| Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation M Shabani, P Borry European Journal of Human Genetics 26 (2), 149-156, 2018 | 184 | 2018 |
| A review of the key issues associated with the commercialization of biobanks T Caulfield, S Burningham, Y Joly, Z Master, M Shabani, P Borry, ... Journal of Law and the Biosciences 1 (1), 94-110, 2014 | 154 | 2014 |
| Blockchain-based platforms for genomic data sharing: a de-centralized approach in response to the governance problems? M Shabani Journal of the American Medical Informatics Association 26 (1), 76-80, 2019 | 114 | 2019 |
| Attitudes of research participants and the general public towards genomic data sharing: a systematic literature review M Shabani, L Bezuidenhout, P Borry Expert review of molecular diagnostics 14 (8), 1053-1065, 2014 | 107 | 2014 |
| The challenges of the expanded availability of genomic information: an agenda-setting paper P Borry, HB Bentzen, I Budin-Ljøsne, MC Cornel, HC Howard, O Feeney, ... Journal of community genetics 9, 103-116, 2018 | 83 | 2018 |
| Re‐identifiability of genomic data and the GDPR: Assessing the re‐identifiability of genomic data in light of the EU General Data Protection Regulation M Shabani, L Marelli EMBO reports 20 (6), e48316, 2019 | 82 | 2019 |
| Ethics review of big data research: What should stay and what should be reformed? A Ferretti, M Ienca, M Sheehan, A Blasimme, ES Dove, B Farsides, ... BMC medical ethics 22 (1), 51, 2021 | 81 | 2021 |
| Will the European Health Data Space change data sharing rules? M Shabani Science 375 (6587), 1357-1359, 2022 | 62 | 2022 |
| Ethics review for international data-intensive research ES Dove, D Townend, EM Meslin, M Bobrow, K Littler, D Nicol, J de Vries, ... Science 351 (6280), 1399-1400, 2016 | 62 | 2016 |
| Toward better governance of human genomic data KC O’Doherty, M Shabani, ES Dove, HB Bentzen, P Borry, MM Burgess, ... Nature genetics 53 (1), 2-8, 2021 | 55 | 2021 |
| From the principles of genomic data sharing to the practices of data access committees M Shabani, BM Knoppers, P Borry EMBO molecular medicine 7 (5), 507-509, 2015 | 53 | 2015 |
| Is there a right time to know?: the right not to know and genetic testing in children P Borry, M Shabani, HC Howard Journal of Law, Medicine & Ethics 42 (1), 19-27, 2014 | 48 | 2014 |
| Controlled access under review: improving the governance of genomic data access M Shabani, SOM Dyke, Y Joly, P Borry PLoS Biology 13 (12), e1002339, 2015 | 47 | 2015 |
| Registered access: authorizing data access SOM Dyke, M Linden, I Lappalainen, JR De Argila, K Carey, D Lloyd, ... European Journal of Human Genetics 26 (12), 1721-1731, 2018 | 45 | 2018 |
| DNA data marketplace: an analysis of the ethical concerns regarding the participation of the individuals E Ahmed, M Shabani Frontiers in genetics 10, 1107, 2019 | 44 | 2019 |
| Are requirements to deposit data in research repositories compatible with the European Union's general data protection regulation? D Mascalzoni, HB Bentzen, I Budin-Ljøsne, LA Bygrave, J Bell, ES Dove, ... Annals of Internal Medicine 170 (5), 332-334, 2019 | 43 | 2019 |
| The European health data space: Too big to succeed? L Marelli, M Stevens, T Sharon, I Van Hoyweghen, M Boeckhout, I Colussi, ... Health policy 135, 104861, 2023 | 42 | 2023 |
| Registered access: a ‘Triple-A’approach SOM Dyke, E Kirby, M Shabani, A Thorogood, K Kato, BM Knoppers European Journal of Human Genetics 24 (12), 1676-1680, 2016 | 42 | 2016 |
| Review of policies of companies and databases regarding access to customers’ genealogy data for law enforcement purposes S Skeva, MHD Larmuseau, M Shabani Personalized medicine 17 (2), 141-153, 2020 | 40 | 2020 |
| Factors that influence data sharing through data sharing platforms: A qualitative study on the views and experiences of cohort holders and platform developers T Devriendt, P Borry, M Shabani Plos one 16 (7), e0254202, 2021 | 36 | 2021 |
