[HTML][HTML] The impact of advance care planning on healthcare professionals' well-being: a systematic review

LG Souza, DA Bouba, R de Carvalho Corôa… - Journal of pain and …, 2024 - Elsevier
Context Advance care planning (ACP) improves care for patients with chronic illnesses and
reduces family stress. However, the impact of ACP interventions on healthcare …

“Let them be”: Family members' perspectives on the participation of advanced cancer patients in nursing research: A qualitative descriptive study

R Zheng, J Wang, Y Wang, P Zhu, L Wang… - International journal of …, 2024 - Elsevier
Background Recruiting advanced cancer patients is crucial for nursing research in cancer
care. However, nurse researchers often face various socio-cultural challenges, particularly …

Lived experiences of end-of-life care at home in the UK: a sco** review of qualitative research

C Clark, S Fenning, W Haynes, S Clay… - British Journal of …, 2024 - bjgp.org
Background Home is the preferred place of care and death for most people with advanced
illness. Aim To examine and describe the published qualitative literature on the lived …

Providing 'professionalism with compassion'; how the time for caring communication can improve experiences at the end-of-life at home, findings from a realist …

K McEwan, J Atkinson, A Clarke, A Bate, C Jeffery… - BMC Palliative Care, 2024 - Springer
Background For many patients and caregivers, attending to dying and death at home will be
a new and fearful experience. This research brings new evidence on the central support of …

Participating in longitudinal observational research on psychiatric rehabilitation: quantitative results from a patient perspective study

LB Dehn, M Driessen, I Steinhart, T Beblo - Frontiers in Psychiatry, 2022 - frontiersin.org
Background Longitudinal observational studies play on an important role for evidence-
based research on health services and psychiatric rehabilitation. However, information is …

[HTML][HTML] Increasing Access to Palliative Care in Cameroon: Progress, Gaps, and Recommendations

N Bassah, A Santos Salas, NC Ambe, NE Ngah - Nursing Reports, 2024 - mdpi.com
Background/Objectives: Access to palliative care is an urgent global need. Countries with
the greatest palliative care needs have limited access. In Cameroon, demand for palliative …

[HTML][HTML] “Beyond Feasibility”: A Qualitative Study of Patients, Their Whānau (Family) and Staff Perspectives and Experiences of a Non-Pharmacological Delirium …

C Davies, K Basire, V Jones, D Gillmore… - Journal of pain and …, 2024 - Elsevier
Background Delirium is prevalent in the hospice population. Despite causing significant
distress to patients and families, delirium is under-recognised. There is a need to better …

[HTML][HTML] Participation in Advance Care Planning Among Medically At-Risk Rural Veterans: Protocol for a Personalized Engagement Model

T Walkner, DW Karr, S Murray, A Heeren… - JMIR Research …, 2024 - researchprotocols.org
Background Many of the challenges in advanced care planning (ACP) conversations are
linked to the waxing and waning progress of serious illnesses. Conversations with patients …

British unpaid carers' perspectives on what impacts their resilience when providing end-of-life care at home: a sco** review

SJ Gould, E Borgstrom… - … Journal of Care …, 2024 - bristoluniversitypressdigital.com
Support from family or friends is fundamental to people dying at home. Understanding what
impacts unpaid carer resilience is essential if services are to support them effectively. Seven …

[HTML][HTML] From Individuals to Systems and Contributions to Creations: Novel Framework for Map** the Efforts of Individuals by Convening The Center of Health and …

D Lewis, L Salmi, A Staley, J Harlow - Journal of participatory …, 2022 - jopm.jmir.org
Background: People with lived health care experiences (often referred to as “patients”) are
increasingly contributing to health care and are most effective when they are involved as …