The study team conducted a systematic review of pediatric and adolescent palliative cancer
care literature from 1995 to 2015 using four databases to inform development of a palliative …

Background: Despite standardization in disease assessments and curative interventions for
childhood cancer, palliative assessments and psychosocial interventions remain diverse …

Parenting and providing extensive care to a child with a life-limiting or life-threatening
disease while being aware of the future loss of the child are among the most stressful …

Background Increased numbers of children with chronic illnesses and/or disabilities who
have complex care needs are living at home. Along with the transfer of care to the home …

Importance Parents' beliefs about what they need to do to be a good parent when their
children are seriously ill influence their medical decisions, and better understanding of these …

The well-being of parents is essential to the well-being of children with life-limiting illness.
Parents are vulnerable to a range of negative financial, physical, and psychosocial issues …

BACKGROUND: When children are seriously ill, parents rely on communication with their
clinicians. However, in previous research, researchers have not defined how this …

Objective: To identify factors important to parents making decisions for their critically ill child.
Design: Prospective cross-sectional study. Setting: Single center, tertiary care PICU …

Highlights•Parent experiences surrounding end-of-life care in the NICU were explored.•The
opportunity to be a parent was important regardless of the infant's prognosis.•NICU nurses …

Parents of ill children have willingly identified their personal beliefs about what they should
do or focus on to fulfill their own internal definition of being a good parent for their child. This …