Patient-reported outcomes for people with diabetes: what and how to measure? A narrative review

CB Terwee, PJM Elders, MT Blom, JW Beulens… - Diabetologia, 2023 - Springer
Patient-reported outcomes (PROs) are valuable for shared decision making and research.
Patient-reported outcome measures (PROMs) are questionnaires used to measure PROs …

Development of an international standard set of outcomes and measurement methods for routine practice for adults with epilepsy: The International Consortium for …

JW Mitchell, F Sossi, I Miller, PB Jaber, Z Das‐Gupta… - …, 2024 - Wiley Online Library
At present, there is no internationally accepted set of core outcomes or measurement
methods for epilepsy clinical practice. Therefore, the International Consortium for Health …

Association of initial SARS-CoV-2 test positivity with patient-reported well-being 3 months after a symptomatic illness

LE Wisk, MA Gottlieb, ES Spatz, H Yu… - JAMA Network …, 2022 - jamanetwork.com
Importance Long-term sequelae after symptomatic SARS-CoV-2 infection may impact well-
being, yet existing data primarily focus on discrete symptoms and/or health care use …

Measuring self-reported cancer-related cognitive impairment: recommendations from the cancer neuroscience initiative working group

AM Henneghan, K Van Dyk, T Kaufmann… - JNCI: Journal of the …, 2021 - academic.oup.com
Cancer and its treatments are associated with increased risk for cancer-related cognitive
impairment (CRCI). Methods and measures used to study and assess self-reported CRCI (sr …

[HTML][HTML] The CONVINCE randomized trial found positive effects on quality of life for patients with chronic kidney disease treated with hemodiafiltration

M Rose, FH Fischer, G Liegl, GFM Strippoli… - Kidney International, 2024 - Elsevier
In the CONVINCE trial, the primary analysis demonstrated a survival benefit for patients
receiving high-dose hemodiafiltration (HDF) as compared with high-flux hemodialysis (HD) …

Impact of COVID-19 on myalgic encephalomyelitis/chronic fatigue syndrome-like illness prevalence: A cross-sectional survey

MS Wood, N Halmer, J Bertolli, LB Amsden, JR Nugent… - Plos one, 2024 - journals.plos.org
Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) can be
triggered by infectious agents including severe acute respiratory syndrome coronavirus 2 …

Cancer–related symptoms among young and middle–aged women undergoing chemotherapy for breast cancer: Application of latent class analysis and network …

T Cai, T Zhou, Q Huang, F Wu, F Ni, C Yuan - European Journal of …, 2023 - Elsevier
Purpose To identify subgroups and symptom networks of cancer–related symptoms for
women under 60 years who are undergoing chemotherapy for breast cancer. Methods A …

An exploratory analysis of contributors to cognitive functioning among sexual and gender minority individuals who had COVID-19

OY Franco-Rocha, KA Lewis, SR Kesler… - Journal of …, 2025 - Taylor & Francis
Sexual and gender minority (SGM) individuals face mental health disparities. However,
research analyzing SGM people's mental health after a COVID-19 diagnosis is scarce. In …

A dominance analysis of subjective cognitive complaint comorbidities in former professional football players with and without mild cognitive impairment

BL Brett, ZY Kerr, A Chandran, S Walton… - Journal of the …, 2023 - cambridge.org
Objectives: Subjective cognitive difficulties (SCDs) are associated with factors commonly
reported in older adults and former contact sport athletes, regardless of objective cognitive …

[HTML][HTML] Subjective and performance-based cognition and their associations with head injury history in older former NFL Players

AT Allen, WR Cole, SR Walton, ZY Kerr… - … and science in …, 2023 - pmc.ncbi.nlm.nih.gov
Purpose: Investigate the association between self-reported subjective and performance-
based cognition among older (50–70 years) former professional American football players …