[HTML][HTML] Should police have access to genetic genealogy databases? Capturing the Golden State Killer and other criminals using a controversial new forensic …
CJ Guerrini, JO Robinson, D Petersen… - PLoS biology, 2018 - journals.plos.org
On April 24, 2018, a suspect in California's notorious Golden State Killer cases was arrested
after decades of eluding the police. Using a novel forensic approach, investigators identified …
after decades of eluding the police. Using a novel forensic approach, investigators identified …
[HTML][HTML] Who's on third? Regulation of third-party genetic interpretation services
In recent years, third-party genetic interpretation services have emerged to help individuals
understand their raw genetic data obtained from researchers, clinicians, and direct-to …
understand their raw genetic data obtained from researchers, clinicians, and direct-to …
Research data management in health and biomedical citizen science: practices and prospects
Background Public engagement in health and biomedical research is being influenced by
the paradigm of citizen science. However, conventional health and biomedical research …
the paradigm of citizen science. However, conventional health and biomedical research …
Meeting the needs of underserved populations: setting the agenda for more inclusive citizen science of medicine
In its expansion to genomic, epidemiological and biomedical research, citizen science has
been promoted as contributing to the democratisation of medical research and healthcare …
been promoted as contributing to the democratisation of medical research and healthcare …
Approaches to governance of participant-led research: a qualitative case study
Objectives Participant-led research (PLR) is a rapidly develo** form of citizen science in
which individuals can create personal and generalisable knowledge. Although PLR lacks a …
which individuals can create personal and generalisable knowledge. Although PLR lacks a …
[HTML][HTML] Third-party genetic interpretation tools: a mixed-methods study of consumer motivation and behavior
In an effort to meet ethical obligations and/or participant expectations, researchers may
consider offering" raw" or uninterpreted genetic data for result return. It is therefore important …
consider offering" raw" or uninterpreted genetic data for result return. It is therefore important …
Genomics: data sharing needs an international code of conduct
Genomics: data sharing needs an international code of conduct Skip to main content Thank you
for visiting nature.com. You are using a browser version with limited support for CSS. To obtain …
for visiting nature.com. You are using a browser version with limited support for CSS. To obtain …
Exploring the challenges of and solutions to sharing personal genomic data for use in healthcare
Boosted by the COVID-19 pandemic, as well as the tightened General Data Protection
Regulation (GDPR) legislation within the European Union (EU), individuals have become …
Regulation (GDPR) legislation within the European Union (EU), individuals have become …
Tensions in ethics and policy created by National Precision Medicine Programs
J Minari, KB Brothers, M Morrison - Human genomics, 2018 - Springer
Precision medicine promises to use genomics and other data-intensive approaches to
improve diagnosis and develop new treatments for major diseases, but also raises a range …
improve diagnosis and develop new treatments for major diseases, but also raises a range …
Return of results and data to study participants
SM Wolf, BJ Evans - Science, 2018 - science.org
Researchers conducting imaging, environmental health, and genetics studies have offered
participants their research findings for years, publishing data on this experience and …
participants their research findings for years, publishing data on this experience and …