[HTML][HTML] Barriers to palliative care access in patients with intellectual disability: a sco** review

J Velepucha-Iniguez, PB Sierra, E Bruera - Journal of pain and symptom …, 2022 - Elsevier
There is limited knowledge about inequalities regarding palliative care access among
patients with intellectual disability. The present sco** review aimed to identify the existing …

Experiences of people with intellectual disability and dementia: A systematic review

P Jacobs, K Watchman, H Wilkinson… - Journal of Applied …, 2023 - Wiley Online Library
Background Dementia disproportionately affects people with intellectual disability. Most
qualitative studies explore their experiences by utilising proxy‐reports. A smaller number of …

“It was one of those complicated cases”: health practitioners' perspectives and practices of providing end-of-life care for people with profound intellectual and multiple …

H Voss, A Loxton, J Anderson, J Watson - BMC palliative care, 2021 - Springer
Background Due to developments in health and social care, people with profound
intellectual and multiple disability (PIMD) are living longer than ever before, meaning they …

The all together group: co‐designing a toolkit of approaches and resources for end‐of‐life care planning with people with intellectual disabilities in social care settings

A Bruun, A Cresswell, D Jeffrey, L Jordan… - Health …, 2024 - Wiley Online Library
Introduction Support staff within social care settings have expressed a need for resources to
facilitate end‐of‐life care planning with people with intellectual disabilities. This study aimed …

Improving palliative care for people with intellectual disability: a self-assessment of policies, practices and competencies in care services

H Voss, AL Francke, AJE de Veer - BMC Palliative Care, 2023 - Springer
Background Providing care for ageing and vulnerable people with intellectual disability (ID)
is challenging, and professionals working in ID care often have limited experience in …

A Photovoice Study: The life experiences of middle‐aged adults with intellectual disabilities in Korea

MA Kim, J Yi, L Bradbury, K Han… - Journal of Applied …, 2021 - Wiley Online Library
Background As adults with intellectual disabilities approach older adulthood, they face
unique physical and psychosocial challenges. This study explored the lived experiences of …

Development, implementation, and evaluation of an advance care planning program for professionals in palliative care of people with intellectual disability

H Voss, AGFM Vogel… - Intellectual and …, 2021 - meridian.allenpress.com
In this article we describe how an advance care planning (ACP) program was developed,
implemented, and evaluated. Our aim was to improve ACP in palliative care for people with …

Qualitative methodological approaches involving participants with intellectual disabilities: Sco** review of literature exploring death and dying

MA Diaz, JE Bickenbach, C Sabariego… - Journal of Applied …, 2024 - Wiley Online Library
Background A paucity of qualitative research on sensitive topics that focuses on participants
with intellectual disabilities leaves their views unexplored. This sco** review mainly aimed …

A Qualitative Exploration of Healthcare Workers' Experiences of End of Life Care for People With an Intellectual Disability

M McCarron, E Burke, PM Callion… - Journal of Advanced …, 2024 - Wiley Online Library
Aim To explore healthcare workers' experiences of end of life care for people with an
intellectual disability. Design A descriptive qualitative study. Method Semi‐structured …

What are we planning, exactly? The perspectives of people with intellectual disabilities, their carers and professionals on end-of-life care planning: A focus group …

A Bruun, A Cresswell, L Jordan… - Palliative …, 2024 - journals.sagepub.com
Background: Deaths of people with intellectual disabilities are often unplanned for and
poorly managed. Little is known about how to involve people with intellectual disabilities in …