Aim: This summary from the American Heart Association provides guidance for the provision
of primary and subspecialty palliative care in pediatric congenital and acquired heart …

While many experts in pediatric cardiology have emphasized the importance of palliative
care involvement, very few studies have assessed the influence of specialty pediatric …

Purpose Parents' perceptions of their child's suffering affect their bereavement experience.
Identifying factors that shape parental perceptions of suffering could help build effective …

Children with heart disease often experience symptoms and medically intense end-of-life
care. Our study explored bereaved parents' perceptions of a “good death” via a mail survey …

Integration of pediatric palliative care (PPC) into management of children with serious illness
and their families is endorsed as the standard of care. Despite this, timely referral to and …

OBJECTIVES: With evidence of benefits of pediatric palliative care (PPC) integration, we
sought to characterize subspecialty PPC referral patterns and end of life (EOL) care in …

Although outcomes for children with heart disease have improved substantially over the past
several decades, heart disease remains one of the leading causes of paediatric mortality …

Background: While the importance of pediatric palliative care (PPC) for children with life-
threatening illness is increasingly recognized, little is known about physicians' attitudes …

Aims Pulmonary arterial hypertension (PAH) is common amongst patients with congenital
heart disease (CHD). It is a severe and complex condition that adversely affects quality of life …

OBJECTIVES: Pediatric patients with advanced heart disease (AHD) often receive high
intensity medical care at the end of life (EOL). In this study, we aimed to determine whether …