Purpose High (and nonselective) recruitment and retention rates in longitudinal studies of
adolescence are essential for illuminating health trajectories and determinants during this …

Building longitudinal population cohorts in Africa for coordinated research and surveillance
can influence the setting of national health priorities, lead to the introduction of appropriate …

Introduction Cleft lip and/or palate (CL/P) affects 1 in 700 live births globally. Children born
with CL/P and their families face various challenges throughout the child's development …

This empirical article explores the dynamics of exchange and reciprocity between cohorters,
that is, study organizers, and cohortees, that is, study participants. Drawing on literature on …

Objective There are compelling ethical and practical reasons for patient engagement in
research (PEIR), however, evidence for best practices remains limited. We investigated …

Background People with amyotrophic lateral sclerosis (ALS) face disability-and travel-
related barriers to research participation. We investigate the usefulness and acceptability of …

Background Studies report various ways in which patients are involved in research design
and conduct. Limited studies explore the influence of patient engagement (PE) at each …

Background Participant involvement in research studies is not a new concept, yet barriers to
implementation remain and application varies. This is particularly true for pandemic …

Longitudinal cohort studies are pivotal to understand how socioeconomic, environmental,
biological, and lifestyle factors influence health and disease. The added value of cohort …

Elite Para athletes report a high incidence of sports injuries, illnesses and other health
issues. Despite this, there are few prevention programmes in Para sport, and many of the …