Desmoid tumors: current perspective and treatment

A Mangla, N Agarwal, G Schwartz - Current Treatment Options in …, 2024 - Springer
Opinion statement Desmoid tumors are rare tumors with a tendency to infiltrate locally. The
lack of a standard treatment approach makes choosing the most appropriate treatment for …

Capturing patient voice to improve outcomes that matter to patients with desmoid tumor

B Kasper, M Gounder, L Hernandez… - Cancer Management …, 2024 - Taylor & Francis
Desmoid tumors (DT) are rare, intermediate-grade sarcomas characterized by locally
aggressive growths that commonly occur intra-abdominally, in the abdominal wall, or in the …

Nirogacestat—the pathway to approval of the first treatment for desmoid tumors, a rare disease

S Kummar, N Bui, WA Messersmith… - … Advances in Rare …, 2025 - journals.sagepub.com
Drug development for rare diseases can be long, complex, and costly. Desmoid tumors (DT),
a rare type of soft-tissue tumor, are associated with substantial and debilitating burden …