Diagnosis and management of noncardiac complications in adults with congenital heart disease: a scientific statement from the American Heart Association
GK Lui, A Saidi, AB Bhatt, LJ Burchill, JF Deen… - Circulation, 2017 - Am Heart Assoc
Life expectancy and quality of life for those born with congenital heart disease (CHD) have
greatly improved over the past 3 decades. While representing a great advance for these …
greatly improved over the past 3 decades. While representing a great advance for these …
Quality of life of adult congenital heart disease patients: a systematic review of the literature
AimsThis review explores the quality of life of adult congenital heart disease patients and the
relationship between disease severity and quality of life. MethodsWe searched seven …
relationship between disease severity and quality of life. MethodsWe searched seven …
Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of …
The vast majority of children with congenital heart disease (CHD) in high-income countries
survive into adulthood. Further, paediatric cardiac services have expanded in middle …
survive into adulthood. Further, paediatric cardiac services have expanded in middle …
Best practices in managing transition to adulthood for adolescents with congenital heart disease: the transition process and medical and psychosocial issues: a …
C Sable, E Foster, K Uzark, K Bjornsen, MM Canobbio… - Circulation, 2011 - Am Heart Assoc
Although the primary responsibility for discussion of sexuality and reproductive issues
should fall to the primary care physician, the cardiologist may have more frequent visits with …
should fall to the primary care physician, the cardiologist may have more frequent visits with …
Loss to specialist follow-up in congenital heart disease; out of sight, out of mind
J Wray, A Frigiola, C Bull… - Heart, 2013 - heart.bmj.com
Objective To evaluate the scale and clinical importance of loss to follow-up of past patients
with serious congenital heart disease, using a common malformation as an example. To …
with serious congenital heart disease, using a common malformation as an example. To …
Relationship of patient and medical characteristics to health status in children and adolescents after the Fontan procedure
Background—After the Fontan procedure, patients are at risk for suboptimal health status
related to their complex healthcare experience, physiological limitations, medical …
related to their complex healthcare experience, physiological limitations, medical …
Associations between knowledge of disease, depression and anxiety, social support, sense of coherence and optimism with health-related quality of life in an …
IntroductionAdvances in overall management have led to an increasing number of
adolescents with congenital heart disease reaching adulthood. This study aimed to evaluate …
adolescents with congenital heart disease reaching adulthood. This study aimed to evaluate …
Experiences of women with cardiac disease in pregnancy: a systematic review and metasynthesis
Objective Cardiac disease in pregnancy is a leading cause of maternal death in high-
income countries. Evidence-based guidelines to assist in planning and managing the …
income countries. Evidence-based guidelines to assist in planning and managing the …
Is sense of coherence a pathway for improving the quality of life of patients who grow up with chronic diseases? A hypothesis
P Moons, TM Norekvål - European Journal of …, 2006 - journals.sagepub.com
A recent study indicated that the quality of life in adult patients with congenital heart disease
was better than that of their healthy counterparts. A possible explanation for this is that these …
was better than that of their healthy counterparts. A possible explanation for this is that these …
Parental overprotection and heart-focused anxiety in adults with congenital heart disease
L Ong, RP Nolan, J Irvine, AH Kovacs - International journal of behavioral …, 2011 - Springer
Background The care of adult patients with congenital heart disease (CHD) is challenging
from a mental health perspective, as these patients continue to face a variety of …
from a mental health perspective, as these patients continue to face a variety of …