Despite the importance of menstruation and the menstrual cycle to health, human rights, and
sociocultural and economic wellbeing, the study of menstrual health suffers from a lack of …

Background: Idiopathic pulmonary fibrosis (IPF) carries significant mortality and
unpredictable progression, with limited therapeutic options. Designing trials with patient …

Purpose Elucidate facilitators, barriers, and key lessons learned regarding the
implementation of system-wide clinical patient-reported outcome measure (PROM) …

Purpose Patients with relapse and/or refractory multiple myeloma (RRMM) have a high
disease burden with poor health-related quality of life (HRQoL) which worsens with each …

Introduction Accurate measurement of myasthenia gravis (MG) severity is required for
appropriate clinical monitoring of patients with MG and assessment of the benefit of new …

Rationale: Fatigue is a common and debilitating symptom for people living with interstitial
lung disease (ILD). Studies on fatigue in ILD are limited, and little headway has been made …

Background Generic and disease-specific patient-reported outcome measures (PROMs)
may lack relevance and sensitivity on a patient-level in chronic diseases with differential …

Background Implementation of patient-reported measures (PRMs) is an integral element for
patient-centered models; however, there is still hardly any quantitative evidence regarding …

Rationale Knowledge about the clinical importance of patient-reported outcome measures
(PROMs) in severe asthma is limited. Objectives To assess whether and to what extent …

Background Patient-reported outcome measures (PROMs) are needed to measure
outcomes that matter to people with nail conditions, from their perspective. Objective To …