[HTML][HTML] Improving the quality of life of people with advanced respiratory disease and severe breathlessness

S Booth, MJ Johnson - Breathe, 2019 - Eur Respiratory Soc
Advanced respiratory disease imposes a greater symptom burden than many cancers but
not does have comparable recognition of the need for supportive and palliative care or the …

End-of-life care: managing common symptoms

RH Albert - American family physician, 2017 - aafp.org
Physicians should be proficient at managing symptoms as patients progress through the
dying process. When possible, proactive regimens that prevent symptoms should be used …

Palliative care early in the care continuum among patients with serious respiratory illness: an official ATS/AAHPM/HPNA/SWHPN policy statement

DR Sullivan, AS Iyer, S Enguidanos… - American Journal of …, 2022 - atsjournals.org
Background: Patients with serious respiratory illness and their caregivers suffer
considerable burdens, and palliative care is a fundamental right for anyone who needs it …

Breathlessness and presentation to the emergency department: a survey and clinical record review

A Hutchinson, A Pickering, P Williams, JM Bland… - BMC pulmonary …, 2017 - Springer
Background Breathlessness is a frequently occurring symptom of cardiorespiratory
conditions and is a common cause of emergency department presentation. The aim of this …

What do family caregivers know about palliative care? Results from a national survey

JN Dionne-Odom, KA Ornstein… - Palliative & supportive care, 2019 - cambridge.org
ObjectiveDespite their key role in caring for individuals with serious, chronic illness, there
have been no national studies examining family caregiver awareness and perceptions of …

[HTML][HTML] Beyond idiopathic pulmonary fibrosis diagnosis: multidisciplinary care with an early integrated palliative approach is associated with a decrease in acute care …

M Kalluri, F Claveria, E Ainsley, M Haggag… - Journal of Pain and …, 2018 - Elsevier
Context Idiopathic pulmonary fibrosis (IPF) is a progressive, incurable interstitial lung
disease with heavy symptom burden and poor quality of life. The last year of life is …

Prevalence and outcomes of breathlessness in older adults: a national population study

AK Smith, DC Currow, AP Abernethy… - Journal of the …, 2016 - Wiley Online Library
Objectives To determine the prevalence and outcomes of breathlessness in older
Americans. Setting Community‐dwelling older adults. Participants Individuals aged 70 and …

Airflow relieves chronic breathlessness in people with advanced disease: an exploratory systematic review and meta-analyses

F Swan, A Newey, M Bland, V Allgar… - Palliative …, 2019 - journals.sagepub.com
Background: Chronic breathlessness is a neglected symptom of advanced diseases. Aim:
To examine the effect of airflow for chronic breathlessness relief. Design: Exploratory …

Six key topics informal carers of patients with breathlessness in advanced disease want to learn about and why: MRC phase I study to inform an educational …

M Farquhar, C Penfold, J Benson, R Lovick… - PloS one, 2017 - journals.plos.org
Introduction Breathlessness is a common symptom of advanced disease placing a huge
burden on patients, health systems and informal carers (families and friends providing daily …

[HTML][HTML] What patients with idiopathic pulmonary fibrosis and caregivers want: filling the gaps with patient reported outcomes and experience measures

M Kalluri, F Luppi, G Ferrara - The American Journal of Medicine, 2020 - Elsevier
Idiopathic pulmonary fibrosis is a progressive disease, with a high mortality within the first 3-
5 years from diagnosis and a poor quality of life mainly because of the burden of symptoms …