Quality of life and measures of quality of life in patients with neuromuscular disorders

TM Burns, CD Graham, MR Rose, Z Simmons - Muscle & nerve, 2012 - Wiley Online Library
In this review we present an overview of quality of life (QOL) and QOL measures in
neuromuscular disorders. We discuss the characteristics of QOL measures used in …

Burden of disease in myasthenia gravis: taking the patient's perspective

S Lehnerer, J Jacobi, R Schilling, U Grittner… - Journal of …, 2022 - Springer
Background Myasthenia gravis (MG) leads to exertion-dependent muscle weakness, but
also psychological and social well-being are limited. We aim to describe the burden of …

[PDF][PDF] A review of psychiatric comorbidity in myasthenia gravis

C Law, CV Flaherty, S Bandyopadhyay - Cureus, 2020 - cureus.com
This study aimed to review studies focused on the affective comorbidities associated with
myasthenia gravis and to determine the extent to which neuromuscular treatment modalities …

Less is more, or almost as much: a 15‐item quality‐of‐life instrument for myasthenia gravis

TM Burns, MR Conaway, GR Cutter… - Muscle & …, 2008 - Wiley Online Library
We describe the process whereby a recently developed myasthenia gravis (MG)‐specific
quality‐of‐life (QOL) instrument was reduced from 60 items to 15 items while maintaining …

Recommendations for myasthenia gravis clinical trials

M Benatar, DB Sanders, TM Burns, GR Cutter… - Muscle & …, 2012 - Wiley Online Library
The recommendations for clinical research standards published in 2000 by a task force of
the Medical Scientific Advisory Board (MSAB) of the Myasthenia Gravis Foundation of …

Quality of life and life circumstances in German myasthenia gravis patients

S Twork, S Wiesmeth, J Klewer, D Pöhlau… - Health and quality of life …, 2010 - Springer
Background Myasthenia gravis (MG) is a chronic neuromuscular disease. Advances in
medical therapy have continuously increased the life expectancy of MG patients, without …

Clinical features and impact of myasthenia gravis disease in Australian patients

S Blum, D Lee, D Gillis, DF McEniery, S Reddel… - Journal of Clinical …, 2015 - Elsevier
We performed a community-based survey of 165 Australian patients with a physician-
confirmed diagnosis of myasthenia gravis (MG). MG is an autoimmune disease of the …

Patient-reported burden of myasthenia gravis: baseline results of the international prospective, observational, longitudinal real-world digital study MyRealWorld-MG

S Dewilde, G Philips, S Paci, J Beauchamp, S Chiroli… - BMJ open, 2023 - bmjopen.bmj.com
Objectives Myasthenia gravis (MG) is a rare, chronic, autoimmune neuromuscular disease
which can affect functional and mental aspects of health and health-related quality of life …

Construction of an efficient evaluative instrument for myasthenia gravis: the MG composite

TM Burns, MR Conaway, GR Cutter… - Muscle & Nerve …, 2008 - Wiley Online Library
We assessed the performance of items from the Quantitative Myasthenia Gravis (QMG),
MMT (Manual Muscle Test), and MG‐ADL (Myasthenia Gravis–Activities of Daily Living) …

The MG‐QOL15 Japanese version: validation and associations with clinical factors

M Masuda, K Utsugisawa, S Suzuki, Y Nagane… - Muscle & …, 2012 - Wiley Online Library
Introduction: Our study aim was to produce a Japanese translation of the 15‐item
Myasthenia Gravis Quality‐of‐Life Scale (MG‐QOL15), assess its reliability and validity, and …