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Quality of life and measures of quality of life in patients with neuromuscular disorders
In this review we present an overview of quality of life (QOL) and QOL measures in
neuromuscular disorders. We discuss the characteristics of QOL measures used in …
neuromuscular disorders. We discuss the characteristics of QOL measures used in …
Burden of disease in myasthenia gravis: taking the patient's perspective
S Lehnerer, J Jacobi, R Schilling, U Grittner… - Journal of …, 2022 - Springer
Background Myasthenia gravis (MG) leads to exertion-dependent muscle weakness, but
also psychological and social well-being are limited. We aim to describe the burden of …
also psychological and social well-being are limited. We aim to describe the burden of …
[PDF][PDF] A review of psychiatric comorbidity in myasthenia gravis
C Law, CV Flaherty, S Bandyopadhyay - Cureus, 2020 - cureus.com
This study aimed to review studies focused on the affective comorbidities associated with
myasthenia gravis and to determine the extent to which neuromuscular treatment modalities …
myasthenia gravis and to determine the extent to which neuromuscular treatment modalities …
Less is more, or almost as much: a 15‐item quality‐of‐life instrument for myasthenia gravis
We describe the process whereby a recently developed myasthenia gravis (MG)‐specific
quality‐of‐life (QOL) instrument was reduced from 60 items to 15 items while maintaining …
quality‐of‐life (QOL) instrument was reduced from 60 items to 15 items while maintaining …
Recommendations for myasthenia gravis clinical trials
The recommendations for clinical research standards published in 2000 by a task force of
the Medical Scientific Advisory Board (MSAB) of the Myasthenia Gravis Foundation of …
the Medical Scientific Advisory Board (MSAB) of the Myasthenia Gravis Foundation of …
Quality of life and life circumstances in German myasthenia gravis patients
S Twork, S Wiesmeth, J Klewer, D Pöhlau… - Health and quality of life …, 2010 - Springer
Background Myasthenia gravis (MG) is a chronic neuromuscular disease. Advances in
medical therapy have continuously increased the life expectancy of MG patients, without …
medical therapy have continuously increased the life expectancy of MG patients, without …
Clinical features and impact of myasthenia gravis disease in Australian patients
S Blum, D Lee, D Gillis, DF McEniery, S Reddel… - Journal of Clinical …, 2015 - Elsevier
We performed a community-based survey of 165 Australian patients with a physician-
confirmed diagnosis of myasthenia gravis (MG). MG is an autoimmune disease of the …
confirmed diagnosis of myasthenia gravis (MG). MG is an autoimmune disease of the …
Patient-reported burden of myasthenia gravis: baseline results of the international prospective, observational, longitudinal real-world digital study MyRealWorld-MG
S Dewilde, G Philips, S Paci, J Beauchamp, S Chiroli… - BMJ open, 2023 - bmjopen.bmj.com
Objectives Myasthenia gravis (MG) is a rare, chronic, autoimmune neuromuscular disease
which can affect functional and mental aspects of health and health-related quality of life …
which can affect functional and mental aspects of health and health-related quality of life …
Construction of an efficient evaluative instrument for myasthenia gravis: the MG composite
We assessed the performance of items from the Quantitative Myasthenia Gravis (QMG),
MMT (Manual Muscle Test), and MG‐ADL (Myasthenia Gravis–Activities of Daily Living) …
MMT (Manual Muscle Test), and MG‐ADL (Myasthenia Gravis–Activities of Daily Living) …
The MG‐QOL15 Japanese version: validation and associations with clinical factors
M Masuda, K Utsugisawa, S Suzuki, Y Nagane… - Muscle & …, 2012 - Wiley Online Library
Introduction: Our study aim was to produce a Japanese translation of the 15‐item
Myasthenia Gravis Quality‐of‐Life Scale (MG‐QOL15), assess its reliability and validity, and …
Myasthenia Gravis Quality‐of‐Life Scale (MG‐QOL15), assess its reliability and validity, and …