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[HTML][HTML] Factors associated with the use of US community–based palliative care for children with life-limiting or life-threatening illnesses and their families: an …
Context As children with life-limiting illnesses (LLIs) and life-threatening illnesses (LTIs) live
longer, challenges to meeting their complex health care needs arise in homes and …
longer, challenges to meeting their complex health care needs arise in homes and …
Hospital use in the last year of life for children with life-threatening complex chronic conditions
BACKGROUND AND OBJECTIVES: Although many adults experience resource-intensive
and costly health care in the last year of life, less is known about these health care …
and costly health care in the last year of life, less is known about these health care …
Patterns of care at the end of life for children and young adults with life-threatening complex chronic conditions
DD DeCourcey, M Silverman, A Oladunjoye… - The Journal of …, 2018 - Elsevier
Objective To characterize patterns of care at the end of life for children and young adults with
life-threatening complex chronic conditions (LT-CCCs) and to compare them by LT-CCC …
life-threatening complex chronic conditions (LT-CCCs) and to compare them by LT-CCC …
Complex care hospital use and postdischarge coaching: a randomized controlled trial
OBJECTIVES: We sought to examine the effect of a caregiver coaching intervention, Plans
for Action and Care Transitions (PACT), on hospital use among children with medical …
for Action and Care Transitions (PACT), on hospital use among children with medical …
Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children: Study examines state-level implementation of concurrent care for …
J Laird, MJ Cozad, J Keim-Malpass, JW Mack… - Health …, 2020 - healthaffairs.org
More than 55,000 children die each year in the United States, and hospice is used for very
few of them at the end of their lives. Nearly one-third of pediatric deaths are a result of …
few of them at the end of their lives. Nearly one-third of pediatric deaths are a result of …
[HTML][HTML] Symptoms and suffering at end of life for children with complex chronic conditions
Context Children with cancer and cardiac disease suffer with high symptom burden at end of
life (EOL). Little is known about the EOL experience for children with other complex chronic …
life (EOL). Little is known about the EOL experience for children with other complex chronic …
Perceptions of the pediatric hospice experience among English-and Spanish-speaking families
R Thienprayoon, E Marks, M Funes… - Journal of palliative …, 2016 - liebertpub.com
Objective: Many children who die are eligible for hospice enrollment but little is known about
parental perceptions of the hospice experience, the benefits, and disappointments. The …
parental perceptions of the hospice experience, the benefits, and disappointments. The …
[HTML][HTML] Home-based care for children with serious illness: ecological framework and research implications
Care for US children living with serious illness and their families at home is a complex and
patchwork system. Improving home-based care for children and families requires a …
patchwork system. Improving home-based care for children and families requires a …
Patterns of diagnoses among children and young adults with life-limiting conditions: a secondary analysis of a national dataset
Background: Numbers of children and young people with life-limiting conditions are rising,
and increasing lifespans require young adults with life-limiting condition to transit to …
and increasing lifespans require young adults with life-limiting condition to transit to …
[HTML][HTML] “Let's bring her home first.” Patient characteristics and place of death in specialized pediatric palliative home care
HU Bender, MB Riester, GD Borasio… - Journal of pain and …, 2017 - Elsevier
Context Specialized pediatric palliative home care (SPPHC) is the main pediatric palliative
care structure in Germany. Detailed data on patient characteristics and care are sparse …
care structure in Germany. Detailed data on patient characteristics and care are sparse …