Listening to families with a person with neurodegenerative disease talk about their quality of life: integrating quantitative and qualitative approaches

A Aza, M Gómez-Vela, M Badia… - Health and quality of life …, 2022 - Springer
Background The diagnosis of a neurodegenerative disease (ND) produces profound
changes in the quality of life of the affected families. Despite the vital importance of these …

The influence of family crisis co** strategies on family quality of life in the assessment of patients with idiopathic scoliosis

B Cyran-Grzebyk, L Perenc, J Wyszyńska… - International Journal of …, 2023 - mdpi.com
The aim of the study was to assess the impact of the strategies of co** with the family crisis
in children and adolescents with idiopathic scoliosis on the level of their family's quality of …

[HTML][HTML] Family-Centered Model and mHealth Through Early Intervention in Rural Populations: A Quasi-Experimental Study

E Jiménez-Arberas, Y Casáis-Suárez… - Children, 2025 - mdpi.com
Background: Considering the challenges of Early Childhood Intervention (ECI), especially in
rural areas with limited access to resources, it is essential to explore innovative strategies to …

Life situation of a caregiver of a child with congenital heart defect and/or other cardiac problems: structure and preliminary validation of a new questionnaire

E Kolarczyk, A Morka, K Barański… - Frontiers in …, 2023 - frontiersin.org
Background Illness in a child with cardiac disease causes stress, brings additional
responsibilities, reorganizes family life, and changes the functioning of the family. Aim This …

Epidemiological Impact of Neurodegenerative Diseases in the Rural Spanish-Portuguese Cross-Border Region

M Alonso-Sardón, M Paulino, A Fernandes… - Neurodegenerative …, 2023 - karger.com
Introduction: Epidemiological data indicate that neurodegenerative diseases show a high
prevalence with a progressive increasing trend, especially in aging populations, as is the …

What factors explain family quality of life in neurodegenerative diseases?

E González-Ortega, A Aza, I Vicario-Molina… - Journal of …, 2023 - Taylor & Francis
Neurodegenerative diseases (NDs) are a major cause of dependency among elderly and
affect the entire family unit. However, the literature has paid little attention to Family Quality …

Electronic Version of the Family Quality of Life Survey (eFQOLS): Reliability and Validity for Families of Individuals With Disabilities and Chronic Health Conditions

PS Samuel, N Anderson… - … Therapy In Health …, 2024 - Taylor & Francis
This study tested the psychometric properties of an electronic Family Quality of Life Survey
(eFQOLS) when used with families of individuals with disabilities and/or chronic health …

Manual de Escala de Calidad de Vida Familiar-Enfermedades Neurodegenerativas-Versión abreviada (FQOLS-ND-SF) 2021

M Badia Corbella, MB Orgaz Baz, I Vicario Molina… - 2021 - gredos.usal.es
[ES] En el marco del modelo de calidad de vida familiar, ha surgido la necesidad del
desarrollo de instrumentos que sirvan de base para evaluar la efectividad de las …