Genes, cells, and biobanks: Yes, there's still a consent problem

T Caulfield, B Murdoch - PLoS biology, 2017 - journals.plos.org
From a research perspective, the interest in biobanking continues to intensify. Governments
and industry have invested heavily in biobanks, as exemplified by initiatives like the United …

The role of race and ethnicity in views toward and participation in genetic studies and precision medicine research in the United States: A systematic review of …

ER Fisher, R Pratt, R Esch, M Kocher… - Molecular genetics & …, 2020 - Wiley Online Library
Background Racial/ethnic minority populations in the United States are consistently
underrepresented in genetic research. Large‐scale public participation is required to ensure …

Gun ownership and social gun culture

B Kalesan, MD Villarreal, KM Keyes… - Injury …, 2016 - injuryprevention.bmj.com
We assessed gun ownership rates in 2013 across the USA and the association between
exposure to a social gun culture and gun ownership. We used data from a nationally …

Citizens' attitudes, knowledge, and educational needs in the field of omics sciences: a systematic literature review

GE Calabrò, M Sassano, A Tognetto, S Boccia - Frontiers in Genetics, 2020 - frontiersin.org
Background: The huge development of omics sciences is changing the classical medical
approach and making new technologies available. In this context, education of citizens is …

Perceptions of genetic testing for personalized nutrition: a randomized trial of DNA-based dietary advice

DE Nielsen, S Shih, A El-Sohemy - Lifestyle Genomics, 2014 - karger.com
Abstract Background/Aims: Direct-to-consumer (DTC) genetic tests have facilitated easy
access to personal genetic information related to health and nutrition; however, consumer …

Consumer perspectives on access to direct‐to‐consumer genetic testing: role of demographic factors and the testing experience

SE Gollust, SW Gray, DA Carere… - The Milbank …, 2017 - Wiley Online Library
Methods: Data were analyzed from the PGen Study, a longitudinal prospective cohort of
DTC-PGT customers of 23andMe (n= 564) and Pathway Genomics (n= 377; total N= 941) …

Demographic differences in willingness to provide broad and narrow consent for biobank research

AT Ewing, LAH Erby, J Bollinger, E Tetteyfio… - Biopreservation and …, 2015 - liebertpub.com
Purpose: This study examined acceptability of two biobank consent models and evaluated
the impact of beliefs about privacy and genetic safeguards on acceptance. Methods: US …

Redemption in an era of penal harm: Moving beyond offender exclusion

AJ Thielo - 2017 - rave.ohiolink.edu
For nearly forty years, the United States was in the grips of punitive thinking and mired in an
era of mass imprisonment. The hallmarks of this paradigm were the embrace of policies and …

[HTML][HTML] Attitudes towards personal genomics among older Swiss adults: an exploratory study

L Mählmann, C Röcke, A Brand, E Hafen… - Applied & translational …, 2016 - Elsevier
Objectives To explore attitudes of Swiss older adults towards personal genomics (PG).
Methods Using an anonymized voluntary paper-and-pencil survey, data were collected from …

Reacting to genetic risk: an experimental survey of life between health and disease

R Almeling, SK Gadarian - Journal of health and social …, 2014 - journals.sagepub.com
Medical sociologists contend that we are living in an era of surveillance medicine, in which
the emphasis on risk blurs the lines between health and disease. Yet, data to examine these …