Assessment of caregiver burden in families of persons with multiple sclerosis

M Buhse - Journal of Neuroscience Nursing, 2008 - journals.lww.com
Multiple sclerosis (MS) is a chronic, unpredictable, progressive, disabling disease. It is
generally diagnosed in young adult females between the ages of 20 and 40 years …

The needs and experiences of caregivers of individuals with multiple sclerosis: a systematic review

LP McKeown, AP Porter-Armstrong… - Clinical …, 2003 - journals.sagepub.com
Primary objective: To appraise recent studies regarding the needs and experiences of
caregivers of individuals with multiple sclerosis (MS). Design: The following computerized …

Impact of walking impairment in multiple sclerosis: perspectives of patients and care partners

NG LaRocca - The Patient: Patient-Centered Outcomes Research, 2011 - Springer
Background: Multiple sclerosis (MS) is a chronic neurologic disease associated with gait
impairment that adversely affects quality of life (QOL). Data are lacking on the impact of …

A longitudinal study on quality of life and depression in ALS patient–caregiver couples

A Gauthier, A Vignola, A Calvo, E Cavallo, C Moglia… - Neurology, 2007 - AAN Enterprises
Objectives: To evaluate the modification of quality of life (QoL) and depression in a series of
amyotrophic lateral sclerosis (ALS) patient–caregiver couples during a period of 9 months …

Caregiver burden in multiple sclerosis: the impact of neuropsychiatric symptoms

N Figved, KM Myhr, JP Larsen… - Journal of Neurology …, 2007 - jnnp.bmj.com
Background: We studied the level of distress in caregivers of patients with recently
diagnosed multiple sclerosis (MS), and their relation to clinical characteristics. Methods …

Subjective caregiver burden of parents of adults with Duchenne muscular dystrophy

RF Pangalila, GAM van den Bos, HJ Stam… - Disability and …, 2012 - Taylor & Francis
Purpose: To describe subjective caregiver burden of parents of adults with Duchenne
muscular dystrophy (DMD) and to identify factors associated with the level of subjective …

Computer-aided retraining of memory and attention in people with multiple sclerosis: a randomized, double-blind controlled trial

A Solari, A Motta, L Mendozzi, E Pucci, M Forni… - Journal of the …, 2004 - Elsevier
Context: Cognitive compromise is one of the main contributing factors to activity and
participation restrictions in people with multiple sclerosis (MS). Computer-aided programs …

Caregiver strain and factors associated with caregiver self-efficacy and quality of life in a community cohort with multiple sclerosis

F Khan, J Pallant, C Brand - Disability and rehabilitation, 2007 - Taylor & Francis
Purpose. To describe the level of caregiver strain and factors associated with caregiver self-
efficacy and quality of life (QoL) in a community cohort with multiple sclerosis (MS). Method …

Burden and health-related quality of life of Spanish caregivers of persons with multiple sclerosis

J Rivera-Navarro, J Benito-León… - Multiple Sclerosis …, 2009 - journals.sagepub.com
Little information exists about caregivers of persons with multiple sclerosis (MS). Our aims
were to describe the characteristics of a sample of caregivers of persons with MS, assess …

Getting the work done: a qualitative study of individuals with multiple sclerosis

K Yorkston, K Johnson, E Klasner… - Disability and …, 2003 - Taylor & Francis
The Problem: Work can be defined as an activity performed to accomplish something in the
presence of obstacles that may make accomplishing the goal difficult. For individuals with …