Background Mixed methods research studies continue to pervade the field of health care,
where pragmatism as a research paradigm and patient‐oriented research (POR) as an …

Background: Kawasaki disease is an acute vasculitis of childhood that leads to coronary
artery aneurysms in≈ 25% of untreated cases. It has been reported worldwide and is the …

Abstract Turner syndrome affects 25–50 per 100,000 females and can involve multiple
organs through all stages of life, necessitating multidisciplinary approach to care. Previous …

Improvements in the function, quality of life, and longevity of patients with Duchenne
muscular dystrophy (DMD) have been achieved through a multidisciplinary approach to …

Autoimmune hepatitis is an inflammatory disease of the liver of unknown cause that may
progress to liver cirrhosis and end stage liver failure if diagnosis is overlooked and treatment …

This article is published as part of a supplement sponsored by Kidney Disease: Improving
Global Outcomes (KDIGO). The opinions or views expressed in this supplement are those of …

Optimal health care is achieved when each person, at every age, receives medically and
developmentally appropriate care. The goal of a planned health care transition is to …

Objective National consensus statements recommend that providers regularly assess the
transition readiness skills of adolescent and young adults (AYA). In 2010 we developed a 29 …

Background There is evidence that the process of transition from paediatric (child) to adult
health services is often associated with deterioration in the health of adolescents with …

For many neuromuscular diseases (NMDs), cardiac disease represents a major cause of
morbidity and mortality. The management of cardiac disease in NMDs is made challenging …