Pragmatism as a paradigm for patient‐oriented research
Background Mixed methods research studies continue to pervade the field of health care,
where pragmatism as a research paradigm and patient‐oriented research (POR) as an …
where pragmatism as a research paradigm and patient‐oriented research (POR) as an …
Management of cardiac involvement associated with neuromuscular diseases: a scientific statement from the American Heart Association
B Feingold, WT Mahle, S Auerbach, P Clemens… - Circulation, 2017 - Am Heart Assoc
For many neuromuscular diseases (NMDs), cardiac disease represents a major cause of
morbidity and mortality. The management of cardiac disease in NMDs is made challenging …
morbidity and mortality. The management of cardiac disease in NMDs is made challenging …
Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of …
The vast majority of children with congenital heart disease (CHD) in high-income countries
survive into adulthood. Further, paediatric cardiac services have expanded in middle …
survive into adulthood. Further, paediatric cardiac services have expanded in middle …
EAACI Guidelines on the effective transition of adolescents and young adults with allergy and asthma
Adolescent and young adult (AYA) patients need additional support, while they experience
the challenges associated with their age. They need specific training to learn the knowledge …
the challenges associated with their age. They need specific training to learn the knowledge …
Advances in managing transition to adulthood for adolescents with congenital heart disease: a practical approach to transition program design: a scientific statement …
It is now expected that most individuals with congenital heart disease will survive to
adulthood, including those with complex heart conditions. Maintaining lifelong medical care …
adulthood, including those with complex heart conditions. Maintaining lifelong medical care …
Contraception and Reproductive Planning for Women With Cardiovascular Disease: JACC Focus Seminar 5/5
KJ Lindley, CN Bairey Merz, MB Davis… - Journal of the American …, 2021 - jacc.org
The majority of reproductive-age women with cardiovascular disease are sexually active.
Early and accurate counseling by the cardiovascular team regarding disease-specific …
Early and accurate counseling by the cardiovascular team regarding disease-specific …
Systematic review of the impact of transition interventions for adolescents with chronic illness on transfer from pediatric to adult healthcare
PY Chu, GR Maslow, M von Isenburg… - Journal of pediatric …, 2015 - Elsevier
Highlights•Few studies on transition interventions report on the outcome of transfer of
care.•The majority of studies in the review were retrospective observational analyses.•The …
care.•The majority of studies in the review were retrospective observational analyses.•The …
Quality indicators for youth transitioning to adult care: a systematic review
BACKGROUND AND OBJECTIVE Transition from pediatric to adult care is associated with
adverse health outcomes for many adolescents with chronic illness. We identified quality …
adverse health outcomes for many adolescents with chronic illness. We identified quality …
Piloting the use of patient-specific cardiac models as a novel tool to facilitate communication during cinical consultations
G Biglino, D Koniordou, M Gasparini, C Capelli… - Pediatric …, 2017 - Springer
This pilot study aimed to assess the impact of using patient-specific three-dimensional (3D)
models of congenital heart disease (CHD) during consultations with adolescent patients …
models of congenital heart disease (CHD) during consultations with adolescent patients …
Healthcare transition for adolescents and young adults with long‐term conditions: Qualitative study of patients, parents and healthcare professionals' experiences
I Coyne, A Sheehan, E Heery… - Journal of clinical …, 2019 - Wiley Online Library
Aim and objectives To examine the needs and perspectives regarding healthcare transition
for adolescents and young adults (AYAs) with the following long‐term conditions: diabetes …
for adolescents and young adults (AYAs) with the following long‐term conditions: diabetes …