Pragmatism as a paradigm for patient‐oriented research

B Allemang, K Sitter, G Dimitropoulos - Health Expectations, 2022 - Wiley Online Library
Background Mixed methods research studies continue to pervade the field of health care,
where pragmatism as a research paradigm and patient‐oriented research (POR) as an …

Management of cardiac involvement associated with neuromuscular diseases: a scientific statement from the American Heart Association

B Feingold, WT Mahle, S Auerbach, P Clemens… - Circulation, 2017 - Am Heart Assoc
For many neuromuscular diseases (NMDs), cardiac disease represents a major cause of
morbidity and mortality. The management of cardiac disease in NMDs is made challenging …

Transition to adulthood and transfer to adult care of adolescents with congenital heart disease: a global consensus statement of the ESC Association of …

P Moons, EL Bratt, J De Backer… - European heart …, 2021 - academic.oup.com
The vast majority of children with congenital heart disease (CHD) in high-income countries
survive into adulthood. Further, paediatric cardiac services have expanded in middle …

EAACI Guidelines on the effective transition of adolescents and young adults with allergy and asthma

G Roberts, M Vazquez‐Ortiz, R Knibb, E Khaleva… - Allergy, 2020 - Wiley Online Library
Adolescent and young adult (AYA) patients need additional support, while they experience
the challenges associated with their age. They need specific training to learn the knowledge …

Advances in managing transition to adulthood for adolescents with congenital heart disease: a practical approach to transition program design: a scientific statement …

AS John, JL Jackson, P Moons, K Uzark… - Journal of the …, 2022 - Am Heart Assoc
It is now expected that most individuals with congenital heart disease will survive to
adulthood, including those with complex heart conditions. Maintaining lifelong medical care …

Contraception and Reproductive Planning for Women With Cardiovascular Disease: JACC Focus Seminar 5/5

KJ Lindley, CN Bairey Merz, MB Davis… - Journal of the American …, 2021 - jacc.org
The majority of reproductive-age women with cardiovascular disease are sexually active.
Early and accurate counseling by the cardiovascular team regarding disease-specific …

Systematic review of the impact of transition interventions for adolescents with chronic illness on transfer from pediatric to adult healthcare

PY Chu, GR Maslow, M von Isenburg… - Journal of pediatric …, 2015 - Elsevier
Highlights•Few studies on transition interventions report on the outcome of transfer of
care.•The majority of studies in the review were retrospective observational analyses.•The …

Quality indicators for youth transitioning to adult care: a systematic review

K Bailey, S Lee, T de Los Reyes, L Lo, K Cleverley… - …, 2022 - publications.aap.org
BACKGROUND AND OBJECTIVE Transition from pediatric to adult care is associated with
adverse health outcomes for many adolescents with chronic illness. We identified quality …

Piloting the use of patient-specific cardiac models as a novel tool to facilitate communication during cinical consultations

G Biglino, D Koniordou, M Gasparini, C Capelli… - Pediatric …, 2017 - Springer
This pilot study aimed to assess the impact of using patient-specific three-dimensional (3D)
models of congenital heart disease (CHD) during consultations with adolescent patients …

Healthcare transition for adolescents and young adults with long‐term conditions: Qualitative study of patients, parents and healthcare professionals' experiences

I Coyne, A Sheehan, E Heery… - Journal of clinical …, 2019 - Wiley Online Library
Aim and objectives To examine the needs and perspectives regarding healthcare transition
for adolescents and young adults (AYAs) with the following long‐term conditions: diabetes …