Carer burden in rare inherited diseases: a literature review and conceptual model

K Sandilands, A Williams, AJ Rylands - Orphanet Journal of Rare …, 2022 - Springer
Background Carers of people living with rare diseases report heavy burden and a plethora
of unmet needs. A previous parental supportive care needs framework has described the …

A biopsychosocial-ecological framework for family-framed dementia care

CA Podgorski, SD Anderson, J Parmar - Frontiers in Psychiatry, 2021 - frontiersin.org
The biopsychosocial model has been applied through collaborative care dementia models
to the diagnosis, symptom management, and treatment of dementia with a focus specifically …

Optimizing the integration of family caregivers in the delivery of person-centered care: evaluation of an educational program for the healthcare workforce

JK Parmar, T L'Heureux, S Anderson… - BMC Health Services …, 2022 - Springer
Background While family caregivers provide 70-90% of care for people living in the
community and assist with 10-30% of the care in congregate living, most healthcare …

Family physician's and primary care team's perspectives on supporting family caregivers in primary care networks

J Parmar, S Anderson, M Abbasi… - International journal of …, 2021 - mdpi.com
Background. Research, practice, and policy have focused on educating family caregivers to
sustain care but failed to equip healthcare providers to effectively support family caregivers …

Physicians' perceptions of patient participation and the involvement of family caregivers in the palliative care pathway

AS Tarberg, M Thronæs, BJ Landstad… - Health …, 2022 - Wiley Online Library
Introduction Patient participation is essential for quality palliative care, and physicians play a
crucial role in promoting participation. This study explores physicians' perceptions of …

Rural family caregiving: A closer look at the impacts of health, care work, financial distress, and social loneliness on anxiety

T L'Heureux, J Parmar, B Dobbs, L Charles, PGJ Tian… - Healthcare, 2022 - mdpi.com
Even before the COVID-19 pandemic, earlier acute care patient discharges, restricted
admissions to long-term care, and reduced home care services increased the amount and …

'I wish I had asked for support earlier'− Immigrant family caregivers' experiences of living with a person with dementia

AC Goodyear, A Arola… - Scandinavian Journal of …, 2023 - Wiley Online Library
Introduction Immigrant family caregivers are increasing worldwide, likewise the number of
older people with dementia. Caring for a person with dementia is demanding, with the …

Prerequisites for providing effective support to family caregivers within the primary care setting–results of a study series in Germany

J Wangler, M Jansky - BMC family practice, 2021 - Springer
Abstract Background General Practitioners are considered to be well placed to monitor
home-care settings and to respond specifically to family caregivers. To do this, they must be …

Burden in caregivers of spinal cord injury patients: a systematic review and meta-analysis

F Keihanian, L Kouchakinejad-Eramsadati… - Acta Neurologica …, 2022 - Springer
Background Caregivers of individuals with spinal cord injury encounter high levels of
physical, psychosocial, and financial burden by providing lifelong assistance. In the present …

Caring for the caregivers—COVID-19 vaccination for essential members of the health care team

MC Halley, C Mangurian - New England Journal of Medicine, 2021 - Mass Medical Soc
Caring for the Caregivers Although a policy of prioritizing the caregivers of medically fragile
children or adults for vaccination against Covid-19 should not replace efforts to directly …