The role of the genetic counsellor: a systematic review of research evidence

H Skirton, C Cordier, C Ingvoldstad, N Taris… - European Journal of …, 2015 - nature.com
In Europe, genetic counsellors are employed in specialist genetic centres or other specialist
units. According to the European Board of Medical Genetics, the genetic counsellor must …

International genetic counseling: What do genetic counselors actually do?

KE Ormond, L Hayward, TM Wessels… - Journal of genetic …, 2024 - Wiley Online Library
We conducted an exploratory survey of genetic counselors internationally to assess
similarities and differences in reported practice activities. Between November 2018 and …

Genetic counseling: Growth of the profession and the professional

BJ Baty - American Journal of Medical Genetics Part C …, 2018 - Wiley Online Library
Growth of the profession of genetic counseling has gone hand‐in‐hand with professional
development of individual genetic counselors. Genetic counseling has achieved most of the …

Complementarity between medical geneticists and genetic counsellors: its added value in genetic services in Europe

M Paneque, C Serra-Juhé, R Pestoff… - European Journal of …, 2017 - nature.com
Clinical genetic services have progressed significantly the last few decades. This has led to
the need for non-medical health-care professionals working as genetic counsellors in …

Genetic diseases and information to relatives: practical and ethical issues for professionals after introduction of a legal framework in France

D d'Audiffret Van Haecke… - European Journal of …, 2018 - nature.com
Health professionals have a role to play in assisting patients to communicate genetic
information to their relatives. In France, a specific unique legal framework has been …

Components of genetic counsellor education: a systematic review of the peer-reviewed literature

C Ingvoldstad, M Seven, N Taris, C Cordier… - Journal of community …, 2016 - Springer
The need for appropriately trained genetic counsellors to support genetic healthcare is now
acknowledged. However, while programmes for education of genetic counsellors exist in a …

Genetic test results and disclosure to family members: qualitative interviews of healthcare professionals' perceptions of ethical and professional issues in France

D d'Audiffret Van Haecke, S de Montgolfier - Journal of genetic counseling, 2016 - Springer
The benefit of disclosing test results to next of kin is to improve prognosis and—in some
cases—even prevent death though earlier monitoring or preventive therapies. Research on …

Genetic counselors and legal recognition: A made‐for‐Canada approach

DM Lambert, D Patrinos, BM Knoppers… - Journal of Genetic …, 2022 - Wiley Online Library
Genetic counseling is a fast‐growing profession in Canada. Yet, despite its growth, genetic
counseling lacks legal recognition in the majority of Canadian provinces. Legal recognition …

Genetic counsellors in Sweden: their role and added value in the clinical setting

R Pestoff, C Ingvoldstad, H Skirton - European Journal of Human …, 2016 - nature.com
Genetic testing is becoming more commonplace in general and specialist health care and
should always be accompanied by genetic counselling, according to Swedish law. Genetic …

How practical experiences, educational routes and multidisciplinary teams influence genetic counselors' clinical practice in Europe

R Pestoff, R Moldovan, C Cordier… - Clinical …, 2018 - Wiley Online Library
The main objective of our study was to explore whether, and to what extent, genetic
counselors' characteristics impact on their tasks in practice. Specifically, we explored the …