Parents' experiences of living with a child with a long‐term condition: a rapid structured review of the literature
Background Living with a child with a long‐term condition can result in challenges above
usual parenting because of illness‐specific demands. A critical evaluation of research …
usual parenting because of illness‐specific demands. A critical evaluation of research …
Experienced continuity of care when patients see multiple clinicians: a qualitative metasummary
JL Haggerty, D Roberge, GK Freeman… - The Annals of Family …, 2013 - Annals Family Med
PURPOSE Continuity of care among different clinicians refers to consistent and coherent
care management and good measures are needed. We conducted a metasummary of …
care management and good measures are needed. We conducted a metasummary of …
Patterns and costs of health care use of children with medical complexity
BACKGROUND AND OBJECTIVE: Health care use of children with medical complexity
(CMC), such as those with neurologic impairment or other complex chronic conditions …
(CMC), such as those with neurologic impairment or other complex chronic conditions …
Involving parents in managing their child's long-term condition—a concept synthesis of family-centered care and partnership-in-care
Background Fostering effective engagement, collaboration and empowerment are central to
supporting parents caring for children with long-term conditions. Methods A concept …
supporting parents caring for children with long-term conditions. Methods A concept …
Models of care delivery for children with medical complexity
Children with medical complexity (CMC) are a subset of children and youth with special
health care needs with high resource use and health care costs. Novel care delivery models …
health care needs with high resource use and health care costs. Novel care delivery models …
Recognition and management of medical complexity
DZ Kuo, AJ Houtrow… - …, 2016 - publications.aap.org
Children with medical complexity have extensive needs for health services, experience
functional limitations, and are high resource utilizers. Addressing the needs of this …
functional limitations, and are high resource utilizers. Addressing the needs of this …
[PDF][PDF] The landscape of medical care for children with medical complexity
Children with medical complexity (CMC) are an important group of children who have
multifaceted clinical and functional needs that can be challenging to manage and treat in the …
multifaceted clinical and functional needs that can be challenging to manage and treat in the …
Effectiveness of structured care coordination for children with medical complexity: the complex care for kids Ontario (CCKO) randomized clinical trial
Importance Children with medical complexity (CMC) have chronic conditions and high
health needs and may experience fragmented care. Objective To compare the effectiveness …
health needs and may experience fragmented care. Objective To compare the effectiveness …
A qualitative study of health care providers' perceptions and experiences of working together to care for children with medical complexity (CMC)
L Altman, Y Zurynski, C Breen, T Hoffmann… - BMC health services …, 2018 - Springer
Background Children with medical complexity (CMC) have a wide range of long term health
problems and disabilities that have an adverse impact on their quality of life. They have high …
problems and disabilities that have an adverse impact on their quality of life. They have high …
Parent perspective on care coordination services for their child with medical complexity
RG Cady, JL Belew - Children, 2017 - mdpi.com
The overarching goal of care coordination is communication and co-management across
settings. Children with medical complexity require care from multiple services and providers …
settings. Children with medical complexity require care from multiple services and providers …