How is quality of life defined and assessed in published research?

DSJ Costa, R Mercieca-Bebber, C Rutherford… - Quality of Life …, 2021 - Springer
Purpose To ensure clarity in communication in the field of quality of life research, and
meaningful use of 'quality of life'as a research outcome, requires two things: awareness that …

A systematic literature review of health utility values in breast cancer

MN Kaur, J Yan, AF Klassen, JP David… - Medical Decision …, 2022 - journals.sagepub.com
Background Health utility values (HUVs) are important inputs to the cost-utility analysis of
breast cancer interventions. Purpose Provide a catalog of breast cancer–related published …

[HTML][HTML] To what extent do patient preferences differ from general population preferences?

K Ludwig, JM Ramos-Goñi, M Oppe, S Kreimeier… - Value in Health, 2021 - Elsevier
Objectives In some countries including Germany, value sets based on general population
preferences are not acceptable for decision-makers in healthcare because the impact of the …

Psychometric validation of the Haemo-QOL-A in participants with hemophilia A treated with gene therapy

J Quinn, KA Delaney, WY Wong… - Patient Related …, 2022 - Taylor & Francis
Purpose The hemophilia-specific health-related quality of life (HRQOL) questionnaire
(Haemo-QOL-A) is validated for detecting QOL changes following standard therapy for …

Evidence of a disability paradox in patient‐reported outcomes in haemophilia

J O'Hara, AP Martin, D Nugent, M Witkop… - …, 2021 - Wiley Online Library
Introduction People with inherited and long‐term conditions such as haemophilia have been
shown to adapt to their levels of disability, often reporting better quality of life (QoL) than …

Valuation of EQ-5D-5L health states from cancer patients' perspective: a feasibility study

Q Chai, Z Yang, X Liu, D An, J Du, X Ma… - The European Journal of …, 2024 - Springer
Objectives To assess the feasibility of estimating an EQ-5D-5L value set using a small study
design in cancer patients and to compare the EQ-5D-5L values based on the preferences of …

Comparing the preferences of patients and the general public for treatment outcomes in type 2 diabetes mellitus

NL Crossnohere, S Janse, E Janssen… - The Patient-Patient …, 2021 - Springer
Background Healthcare treatments and interventions are traditionally evaluated from the
societal perspective, but a more patient-centric perspective has been proposed in recent …

Urban/rural differences in preferences for EQ-5D-5L health states: A study of a multi-ethnic region in China

M Liao, N Luo, K Rand, Z Yang - Quality of Life Research, 2023 - Springer
Objectives This study aimed to compare health preferences for EQ-5D-5L health states
between urban and rural populations in China. Methods This study used pooled secondary …

Valuation of the EORTC Quality of Life Utility Core 10 Dimensions (QLU-C10D) in a Multi-ethnic Asian Setting: How Does Having Cancer Matter?

M Gandhi, R Kanesvaran, MFBH Rashid… - …, 2024 - Springer
Objectives The aim of the study was to develop and compare utility value sets for the EORTC
QLU-C10D, a cancer-specific utility instrument based on the EORTC QLQ-C30, using the …

The Hidden Toll of Psychological Distress in Australian Adults and Its Impact on Health-Related Quality of Life Measured as Health State Utilities

MI ul Husnain, M Hajizadeh, H Ahmad… - … Health Economics and …, 2024 - Springer
Background Psychological distress (PD) is a major health problem that affects all aspects of
health-related quality of life including physical, mental and social health, leading to a …