Decision-making for extremely preterm infants: a qualitative systematic review
JA Krick, DM Feltman, M Arnolds - The Journal of Pediatrics, 2022 - Elsevier
Objective To synthesize and describe important elements of decision-making during
antenatal consultation for threatened preterm delivery at the margin of gestational viability …
antenatal consultation for threatened preterm delivery at the margin of gestational viability …
Cardiac surgery for children with trisomies 13 and 18: where are we now?
A Janvier, B Farlow, K Barrington - Seminars in perinatology, 2016 - Elsevier
The objective is to examine whether cardiac surgery should be considered for children with
trisomy 13 or 18 (T13 or 18). T13 or 18 were previously referred to as “lethal” conditions due …
trisomy 13 or 18 (T13 or 18). T13 or 18 were previously referred to as “lethal” conditions due …
Survival among infants born at 22 or 23 weeks' gestation following active prenatal and postnatal care
K Mehler, A Oberthuer, T Keller, I Becker… - JAMA …, 2016 - jamanetwork.com
Importance Rates of survival for infants born at the border of viability are still low and vary
considerably among neonatal intensive care units. Objective To determine whether higher …
considerably among neonatal intensive care units. Objective To determine whether higher …
Thresholds for resuscitation of extremely preterm infants in the UK, Sweden, and Netherlands
D Wilkinson, E Verhagen, S Johansson - Pediatrics, 2018 - publications.aap.org
BACKGROUND: It is widely acceptable to involve parents in decision-making about the
resuscitation of extremely preterm infants (EPIs) in the gray zone. However, there are …
resuscitation of extremely preterm infants (EPIs) in the gray zone. However, there are …
Our child is not just a gestational age. A first-hand account of what parents want and need to know before premature birth.
K Staub, J Baardsnes, N Hébert, M Hébert… - Acta …, 2014 - search.ebscohost.com
The authors discuss the realities of bein parents of extremely prematured children. The
authors mention the case of Marcus who was born at 23 weeks and weighs 535 grams but …
authors mention the case of Marcus who was born at 23 weeks and weighs 535 grams but …
Decision coaching using a patient decision aid for youth and parents considering insulin delivery methods for type 1 diabetes: a pre/post study
ML Lawson, AL Shephard, B Feenstra, L Boland… - BMC pediatrics, 2020 - Springer
Background Choice of insulin delivery for type 1 diabetes can be difficult for many parents
and children. We evaluated decision coaching using a patient decision aid for hel** youth …
and children. We evaluated decision coaching using a patient decision aid for hel** youth …
Very preterm birth and parents' quality of life 27 years later
METHODS: A prospective whole-population study in Germany followed very preterm (VP)(<
32 weeks gestation) or very low birth weight (VLBW)(< 1500 g)(N= 250) and term-born …
32 weeks gestation) or very low birth weight (VLBW)(< 1500 g)(N= 250) and term-born …
Decision‐making at the borderline of viability: Who should decide and on what basis?
L Gillam, D Wilkinson, V Xafis… - Journal of Paediatrics …, 2017 - Wiley Online Library
Parents and medical staff usually agree on the management of preterm labour at borderline
viability, when there is a relatively high risk of long‐term neurodevelopmental problems in …
viability, when there is a relatively high risk of long‐term neurodevelopmental problems in …
Borderline viability: controversies in caring for the extremely premature infant
SR Leuthner - Clinics in perinatology, 2014 - perinatology.theclinics.com
Controversy surrounding the decision to resuscitate at the limits or borderline of viability has
been at the center of neonatal ethical debate for decades. This debate has led to numerous …
been at the center of neonatal ethical debate for decades. This debate has led to numerous …
Professionals' preferences in prenatal counseling at the limits of viability: a nationwide qualitative Dutch study
R Geurtzen, A van Heijst, J Draaisma… - European Journal of …, 2017 - Springer
Prenatal counseling practices at the limits of viability do vary, and constructing a counseling
framework based on guidelines, professional and parental preferences, might achieve more …
framework based on guidelines, professional and parental preferences, might achieve more …