Engaging patients to improve quality of care: a systematic review

Y Bombard, GR Baker, E Orlando, C Fancott… - Implementation …, 2018 - Springer
Background To identify the strategies and contextual factors that enable optimal
engagement of patients in the design, delivery, and evaluation of health services. Methods …

Participatory action research (PAR) with children and youth: An integrative review of methodology and PAR outcomes for participants, organizations, and communities

DP Shamrova, CE Cummings - Children and Youth Services Review, 2017 - Elsevier
Due to an increasing emphasis on children's rights, children's participation in studies about
social issues has become a trend. The research community has been liberally utilizing the …

Participatory peer research methodology: An effective method for obtaining young people's perspectives on transitions from care to adulthood?

CJ Lushey, ER Munro - Qualitative Social Work, 2015 - journals.sagepub.com
Peer research has the potential to empower young people to participate in research by
minimising power imbalances between researchers and participants; this may reduce bias …

Partnering with insiders: A review of peer models across community‐engaged research, education and social care

LM Vaughn, C Whetstone, A Boards… - Health & social care …, 2018 - Wiley Online Library
Within community‐engaged research, education and social care, peer models that partner
with local “insiders” are increasingly common. Peer models are composed of insider “lay” …

Engaging children and families in pediatric Health Research: a sco** review

R Flynn, S Walton, SD Scott - Research involvement and engagement, 2019 - Springer
Aim Patient engagement (PE) in pediatric health services research is challenging due to
contextual factors such as busyness of parenting, work schedules, and diverse family …

Patient and public involvement of young people with a chronic condition in projects in health and social care: a sco** review

F van Schelven, H Boeije, V Mariën… - Health …, 2020 - Wiley Online Library
Background The involvement of young people with a chronic condition in research and
implementation projects in health and social care receives growing attention. Yet, there is a …

[HTML][HTML] Using technology to scale up youth-led participatory action research: A systematic review

L Gibbs, M Kornbluh, K Marinkovic, S Bell… - Journal of Adolescent …, 2020 - Elsevier
Purpose Rapid advances in technology create opportunities for adolescents to influence
practice and policy in health and other domains. Technology can support the scaling of …

Interaction design research with adolescents: methodological challenges and best practices

ES Poole, T Peyton - Proceedings of the 12th International Conference …, 2013 - dl.acm.org
Adolescents represent nearly one-fifth of the planet's population, yet the interaction design
literature offers little guidance on the unique needs, opportunities, and challenges of …

The INSCHOOL project: Showcasing participatory qualitative methods derived from patient and public involvement and engagement (PPIE) work with young people …

B Spencer, S Hugh-Jones, D Cottrell, S Pini - Research Involvement and …, 2023 - Springer
Background Evidence suggests resources and services benefit from being developed in
collaboration with the young people they aim to support. Despite this, patient and public …

Unraveling triadic communication in hospital consultations with adolescents with chronic conditions: the added value of mixed methods research

AL van Staa… - Patient education and …, 2011 - Elsevier
OBJECTIVE: To integrate findings of a mixed methods research (MMR) into adolescents'
preferences and competencies for communication during consultations, in order to …