Background To receive the best care, people share their health data (HD) with their health
practitioners (known as sharing HD for primary purposes). However, during the past two …

Background: Technological advancements are rapidly propelling the field of genome
research forward, while lawmakers attempt to keep apace with the risks these advances …

Background The language of “participant-driven research,”“crowdsourcing” and “citizen
science” is increasingly being used to encourage the public to become involved in research …

Abstract An 'Information Centre'has recently been established by law which has the power to
collect, collate and provide access to the medical information for all patients treated by the …

Background Biobanks provide an important foundation for genomic and personalised
medicine. In order to enhance their scientific power and scope, they are increasingly …

Objectives: The necessity for biobanks to share their resources with third parties poses
potential risks to public trust and the intention to participate in genetic research. We explore …

Biobanks will be essential to facilitate the translation of genomic research into real
improvements to healthcare. Biobanking is a long-term commitment, requiring public support …

Background Biobanking is a relatively new concept in Egypt. Building a good relationship
with different stakeholders is essential for the social sustainability of biobanks. To establish …

Assessing public and patients' expectations and concerns about genomic data sharing is
essential to promote adequate data governance and engagement in rare diseases …

Background Biobanks and biospecimen collections are becoming a primary means of
delivering personalized diagnostics and tailoring individualized therapeutics. This shift …