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[HTML][HTML] The minimum data set for rare diseases: systematic review
Background The minimum data set (MDS) is a collection of data elements to be grouped
using a standard approach to allow the use of data for clinical and research purposes …
using a standard approach to allow the use of data for clinical and research purposes …
Epidemiological characterization of rare diseases in Brazil: A retrospective study of the Brazilian Rare Diseases Network
Abstract Background The Brazilian Policy for Comprehensive Care for People with Rare
Diseases was implemented in 2014; however, national epidemiological data on rare …
Diseases was implemented in 2014; however, national epidemiological data on rare …
A proposal for a set of attributes relevant for Web portal data quality: The Brazilian Rare Disease Network case
Despite widespread growth in the use and complexity of web portals, insufficient attention is
paid to their quality. Thus, this paper aims to describe the validation process of the Brazilian …
paid to their quality. Thus, this paper aims to describe the validation process of the Brazilian …
Supervised machine learning techniques applied to medical records toward the diagnosis of rare autoimmune diseases
PE Andrade Martins, ME Colombo Filho… - International Conference …, 2023 - Springer
Rare autoimmune diseases provoke immune system malfunctioning, which reacts and
damages the body's cells and tissues. They have a low prevalence, classified as complex …
damages the body's cells and tissues. They have a low prevalence, classified as complex …
Digital health research governance: from FAIR to RE-AIM
FA Bernardi - 2024 - teses.usp.br
This doctoral research aims to develop a governance model for digital health research data
to enhance the quality of collected data and translate research outcomes into an integrated …
to enhance the quality of collected data and translate research outcomes into an integrated …