Patient-oriented research competencies in health (PORCH) for researchers, patients, healthcare providers, and decision-makers: results of a sco** review

N Frisch, P Atherton, MM Doyle-Waters… - Research involvement …, 2020 - Springer
Plain English summary Background The Canadian Institutes of Health Research funded a
program,“patient-oriented research”(POR), to change the way health research is done. POR …

Co-production of a systematic review on decision coaching: a mixed methods case study within a review

J Jull, M Smith, M Carley, D Stacey, ID Graham… - Systematic …, 2024 - Springer
Background Co-production is a collaborative approach to prepare, plan, conduct, and apply
research with those who will use or be impacted by research (knowledge users). Our team of …

Researchers, patients, and other stakeholders' perspectives on challenges to and strategies for engagement

A Heckert, LP Forsythe, KL Carman, L Frank… - Research Involvement …, 2020 - Springer
Background There is growing interest in patient and stakeholder engagement in research,
yet limited evidence about effective methods. Since 2012, the Patient-Centered Outcomes …

“What the hell is this, and who the hell are you?” Role and identity negotiation in research-practice partnerships

CC Farrell, C Harrison, CE Coburn - AERA Open, 2019 - journals.sagepub.com
In research-practice partnerships (RPPs), the line between researcher and practitioner can
be blurred, and the roles for everyone involved may be unclear. Yet little is known about how …

Nothing about us without us: A co‐production strategy for communities, researchers and stakeholders to identify ways of improving health and reducing inequalities

A Albert, S Islam, M Haklay… - Health …, 2023 - Wiley Online Library
Introduction Co‐production with communities is increasingly seen as best practice that can
improve the quality, relevance and effectiveness of research and service delivery. Despite …

Patient partner compensation in research and health care: the patient perspective on why and how

DP Richards, I Jordan, K Strain, Z Press - Patient Experience Journal, 2018 - pxjournal.org
As patient and family engagement activity broadens across the continuum of care and
expands around the world, the question of compensation for an increasingly competent …

Caregiver needs assessment in primary care: views of clinicians, staff, patients, and caregivers

C Riffin, JL Wolff, M Estill, S Prabhu… - Journal of the …, 2020 - Wiley Online Library
OBJECTIVES To understand current practices, challenges, and opportunities for a
systematic assessment of family caregiversʼ needs and risks in primary care. DESIGN …

“It's Like They Forget That the Word 'Health'Is in 'Home Health Aide'”: Understanding the Perspectives of Home Care Workers Who Care for Adults With Heart Failure

MR Sterling, AF Silva, PBK Leung… - Journal of the …, 2018 - Am Heart Assoc
Background Home care workers (HCW s) increasingly provide long‐term and
posthospitalization care for community‐dwelling adults with heart failure (HF). They observe …

LATE to the PART-y

KA Josephs, I Mackenzie, MP Frosch, EH Bigio… - Brain, 2019 - academic.oup.com
Figure 1 TDP-43 immunoreactive inclusions can be found in many different
neurodegenerative diseases. Currently TDP-43 proteinopathies are divided into primary …

[LIBRO][B] The Routledge handbook of social work practice research

LB Joubert, M Webber - 2020 - api.taylorfrancis.com
The Routledge Handbook of Social Work Practice Research Page 1 The Routledge Handbook
of Social Work Practice Research The Routledge Handbook of Social Work Practice Research …