Patient stakeholder engagement in research: a narrative review to describe foundational principles and best practice activities
JD Harrison, AD Auerbach, W Anderson… - Health …, 2019 - Wiley Online Library
Background Health research is evolving to include patient stakeholders (patients, families
and caregivers) as active members of research teams. Frameworks describing the …
and caregivers) as active members of research teams. Frameworks describing the …
Patient involvement in healthcare workers' practices: how does it operate? A mixed-methods study in a French university hospital
L Malloggi, B Leclère, C Le Glatin, L Moret - BMC health services research, 2020 - Springer
Background The present challenge for patient involvement is the improvement of healthcare
efficiency through a deeper consideration of the patient experience. In hospitals, numerous …
efficiency through a deeper consideration of the patient experience. In hospitals, numerous …
Beyond translation: engaging with culturally and linguistically diverse consumers
Background In the context of an effective consumer engagement framework, there is
potential for health‐care delivery to be safer. Consumers from culturally and linguistically …
potential for health‐care delivery to be safer. Consumers from culturally and linguistically …
What is the role of cultural competence in ethnic minority consumer engagement? An analysis in community healthcare
Background Effective patient engagement has been associated with high quality health
care. There is a dearth of evidence around effective engagement with consumers from …
care. There is a dearth of evidence around effective engagement with consumers from …
The story as a quality instrument: Develo** an instrument for quality improvement based on narratives of older adults receiving long-term care
The individual experiences of older adults in long-term care are broadly recognized as an
important source of information for measuring wellbeing and quality of care. Narrative …
important source of information for measuring wellbeing and quality of care. Narrative …
Translating planetary health principles into sustainable primary care services
J Gonzalez-Holguera, M Gaille… - Frontiers in Public …, 2022 - frontiersin.org
Global anthropogenic environmental degradations such as climate change are increasingly
recognized as critical public health issues, on which human beings should urgently act in …
recognized as critical public health issues, on which human beings should urgently act in …
What is “the patient perspective” in patient engagement programs? Implicit logics and parallels to feminist theories
Public and patient involvement (PPI) in health care may refer to many different processes,
ranging from participating in decision-making about one's own care to participating in health …
ranging from participating in decision-making about one's own care to participating in health …
A qualitative study on the educational needs of young people with chronic conditions transitioning from pediatric to adult care
M Morsa, P Lombrail, B Boudailliez… - Patient preference …, 2018 - Taylor & Francis
Objectives Although patient education is recommended to facilitate the transition from
pediatric to adult care, a consensus has not been reached for a particular model. The …
pediatric to adult care, a consensus has not been reached for a particular model. The …
Exploring ethical issues related to patient engagement in healthcare: Patient, clinician and researcher's perspectives
Patient engagement in healthcare is increasingly discussed in the literature, and initiatives
engaging patients in quality improvement activities, organizational design, governance, and …
engaging patients in quality improvement activities, organizational design, governance, and …
Patient and family advisory councils (PFACs): identifying challenges and solutions to support engagement in research
JD Harrison, WG Anderson, M Fagan… - The Patient-Patient …, 2018 - Springer
Objective The aim was to describe barriers to patient and family advisory council (PFAC)
member engagement in research and strategies to support engagement in this context …
member engagement in research and strategies to support engagement in this context …