Patient stakeholder engagement in research: a narrative review to describe foundational principles and best practice activities

JD Harrison, AD Auerbach, W Anderson… - Health …, 2019 - Wiley Online Library
Background Health research is evolving to include patient stakeholders (patients, families
and caregivers) as active members of research teams. Frameworks describing the …

Patient involvement in healthcare workers' practices: how does it operate? A mixed-methods study in a French university hospital

L Malloggi, B Leclère, C Le Glatin, L Moret - BMC health services research, 2020 - Springer
Background The present challenge for patient involvement is the improvement of healthcare
efficiency through a deeper consideration of the patient experience. In hospitals, numerous …

Beyond translation: engaging with culturally and linguistically diverse consumers

R Harrison, M Walton, U Chitkara, E Manias… - Health …, 2020 - Wiley Online Library
Background In the context of an effective consumer engagement framework, there is
potential for health‐care delivery to be safer. Consumers from culturally and linguistically …

What is the role of cultural competence in ethnic minority consumer engagement? An analysis in community healthcare

R Harrison, M Walton, A Chauhan, E Manias… - International Journal for …, 2019 - Springer
Background Effective patient engagement has been associated with high quality health
care. There is a dearth of evidence around effective engagement with consumers from …

The story as a quality instrument: Develo** an instrument for quality improvement based on narratives of older adults receiving long-term care

A Scheffelaar, M Janssen, K Luijkx - International journal of …, 2021 - mdpi.com
The individual experiences of older adults in long-term care are broadly recognized as an
important source of information for measuring wellbeing and quality of care. Narrative …

Translating planetary health principles into sustainable primary care services

J Gonzalez-Holguera, M Gaille… - Frontiers in Public …, 2022 - frontiersin.org
Global anthropogenic environmental degradations such as climate change are increasingly
recognized as critical public health issues, on which human beings should urgently act in …

What is “the patient perspective” in patient engagement programs? Implicit logics and parallels to feminist theories

P Rowland, S McMillan, P McGillicuddy, J Richards - Health:, 2017 - journals.sagepub.com
Public and patient involvement (PPI) in health care may refer to many different processes,
ranging from participating in decision-making about one's own care to participating in health …

A qualitative study on the educational needs of young people with chronic conditions transitioning from pediatric to adult care

M Morsa, P Lombrail, B Boudailliez… - Patient preference …, 2018 - Taylor & Francis
Objectives Although patient education is recommended to facilitate the transition from
pediatric to adult care, a consensus has not been reached for a particular model. The …

Exploring ethical issues related to patient engagement in healthcare: Patient, clinician and researcher's perspectives

M Montreuil, JT Martineau, E Racine - Journal of bioethical inquiry, 2019 - Springer
Patient engagement in healthcare is increasingly discussed in the literature, and initiatives
engaging patients in quality improvement activities, organizational design, governance, and …

Patient and family advisory councils (PFACs): identifying challenges and solutions to support engagement in research

JD Harrison, WG Anderson, M Fagan… - The Patient-Patient …, 2018 - Springer
Objective The aim was to describe barriers to patient and family advisory council (PFAC)
member engagement in research and strategies to support engagement in this context …