Recent research shows the importance of hope in the context of life-threatening illness and
the end of life for patients and their families. While some patients and family members …

Objectives To describe palliative, concurrent, and hospice care in pediatric oncology in the
United States (US), we present a clinical scenario illustrating palliative and hospice care …

BACKGROUND: When children are seriously ill, parents rely on communication with their
clinicians. However, in previous research, researchers have not defined how this …

Abstract Background Vascular malformations (VMs) are rare disorders that can cause pain,
coagulopathy, disfigurement, asymmetric growth, and disability. Families affected by …

Purpose Communication is essential to providing family-centered care in pediatric oncology.
Previously, we developed a functional model of communication between parents and …

Objectives the psychological state of parents, who are considered the primary caregivers of
a sick child, can affect the child's behavior and emotions. This study analyzed the …

Purpose This study aims to examine the relationship between the level of hope in mothers
who have a child with cancer and its related factors in Iran. Method A cross-sectional and …

Introduction The natural history and treatment of spinal muscular atrophy (SMA) is currently
being transformed by the development and availability of novel therapies, with significant …

Background Hope is negatively associated with parental psychosocial distress and
psychological maladjustment as well as an important aspect of emotional well-being and …

Objectives To describe the tensions experienced by clinicians and psychosocial
professionals that affect communication in pediatric oncology. Methods Ten focus groups …