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Are rare diseases overlooked by medical education? Awareness of rare diseases among physicians in Poland: an explanatory study
Background During their studies, future physicians are often taught that while evaluating a
patient they should first consider a common diagnosis and not a rare one. Consequently …
patient they should first consider a common diagnosis and not a rare one. Consequently …
De qué hablamos cuando hablamos de pedagogía hospitalaria
O Lizasoain - Edutec, Revista Electrónica de Tecnología Educativa, 2021 - edutec.es
Partiendo del hecho incontestable de que una enfermedad en la infancia significa una
experiencia desconcertante para toda la familia, el presente artículo se centra en destacar …
experiencia desconcertante para toda la familia, el presente artículo se centra en destacar …
[HTML][HTML] Barriers to and facilitators of providing care for adolescents suffering from Rare diseases: A mixed systematic review
Rare Diseases (RDs) in adolescents are characterized by low frequency and clinical
heterogeneity, are chronic and deliberating and demand a multidisciplinary approach as …
heterogeneity, are chronic and deliberating and demand a multidisciplinary approach as …
Consequences of rare diagnoses for education and daily life: development of an observation instrument
G Jaeger, AC Röjvik, E Hjelmquist, A Hansla… - Orphanet Journal of …, 2022 - Springer
Background Ågrenska, a Swedish national centre for rare diagnoses and health conditions,
has arranged courses for families of children with rare diagnoses for over thirty years, and …
has arranged courses for families of children with rare diagnoses for over thirty years, and …
Enhancing interprofessional interagency collaboration for minoritized and low-income children with chronic illnesses.
KC Stoiber, CA Ruehl, KK Landry, AA Smith… - School …, 2024 - psycnet.apa.org
Children with chronic illnesses present unique health, psychosocial, and learning
challenges. Due to the complexities surrounding their needs, these children and their …
challenges. Due to the complexities surrounding their needs, these children and their …
Creating optimal educational settings for children with rare diseases–a working method
AC Röjvik, G Jaeger, E Hjelmquist… - European Journal of …, 2024 - Taylor & Francis
Rare diseases are usually complex syndromes, which sometimes cause extensive
functional impairments affecting everyday life. The number of rare diseases and of people …
functional impairments affecting everyday life. The number of rare diseases and of people …
Pre-kindergarten teachers' perceived preparedness to support children with asthma, cancer, and diabetes in the classroom
A Miller, AV Hegde, C Jung Yeh… - Journal of Early …, 2024 - Taylor & Francis
As childhood chronic conditions rise, it becomes increasingly important for educators to feel
prepared to address the diverse needs of these students. This study examined trends in …
prepared to address the diverse needs of these students. This study examined trends in …
Center-based childcare access to health screenings and developmental assessments in US children from birth to five
S Rizk, B Barger - Maternal and Child Health Journal, 2025 - Springer
Objective To examine the odds of children aged 0-5 in center-based childcare programs
receiving referrals for health screenings and developmental assessments, controlling for …
receiving referrals for health screenings and developmental assessments, controlling for …
[HTML][HTML] Evaluation of measles-rubella control and prevention program implementation: System and community review
S Gusrina, MN Sitaresmi, S Aryanto… - Clinical Epidemiology and …, 2024 - Elsevier
Abstract Introduction The WHO targets Southeast Asia to eliminate measles and rubella by
2023. Measles-Contain Vaccination (MCV) coverage in Indonesia has dropped 6%, and …
2023. Measles-Contain Vaccination (MCV) coverage in Indonesia has dropped 6%, and …
Estudio sobre la transformación de las escuelas en espacios inclusivos y accesibles
C Márquez Vázquez, S Sánchez Fuentes - 2024 - riberdis.cedid.es
El objetivo principal de este estudio ha sido identificar las estrategias necesarias para la
transformación de la escuela en espacios inclusivos y accesibles en base a los hallazgos …
transformación de la escuela en espacios inclusivos y accesibles en base a los hallazgos …