Racialising genetic risk: assumptions, realities, and recommendations

JP Cerdeña, V Grubbs, AL Non - The Lancet, 2022‏ - thelancet.com
Scientists and clinicians wield the immense power of defining reality and producing facts. 1
Although no person can truly claim objectivity, scholars enjoy the authority of expertise and …

[HTML][HTML] Screening for autosomal recessive and X-linked conditions during pregnancy and preconception: a practice resource of the American College of Medical …

AR Gregg, M Aarabi, S Klugman, NT Leach… - Genetics in …, 2021‏ - Elsevier
Carrier screening began 50 years ago with screening for conditions that have a high
prevalence in defined racial/ethnic groups (eg, Tay–Sachs disease in the Ashkenazi Jewish …

Preconception genome medicine: current state and future perspectives to improve infertility diagnosis and reproductive and health outcomes based on individual …

A Capalbo, M Poli, A Riera-Escamilla… - Human reproduction …, 2021‏ - academic.oup.com
BACKGROUND Our genetic code is now readable, writable and hackable. The recent
escalation of genome-wide sequencing (GS) applications in population diagnostics will not …

Uncloaking a lost cause: Decolonizing ancestry estimation in the United States

EA DiGangi, JD Bethard - American Journal of Physical …, 2021‏ - Wiley Online Library
Since the professionalization of US‐based forensic anthropology in the 1970s, ancestry
estimation has been included as a standard part of the biological profile, because …

Expanding the genotypic and phenotypic spectrum in a diverse cohort of 104 individuals with Wiedemann‐Steiner syndrome

SE Sheppard, IM Campbell, MH Harr… - American Journal of …, 2021‏ - Wiley Online Library
Wiedemann‐Steiner syndrome (WSS) is an autosomal dominant disorder caused by
monoallelic variants in KMT2A and characterized by intellectual disability and …

Expanded carrier screening for reproductive risk assessment: an evidence‐based practice guideline from the National Society of Genetic Counselors

KG Sagaser, J Malinowski, L Westerfield… - Journal of genetic …, 2023‏ - Wiley Online Library
Expanded carrier screening (ECS) intends to broadly screen healthy individuals to
determine their reproductive chance for autosomal recessive (AR) and X‐linked (XL) …

[HTML][HTML] Clinical, technical, and environmental biases influencing equitable access to clinical genetics/genomics testing: A points to consider statement of the …

DR Matalon, CJ Zepeda-Mendoza, M Aarabi… - Genetics in …, 2023‏ - Elsevier
Disclaimer: This statement is designed primarily as an educational resource for medical
geneticists and other clinicians to help them provide quality medical services. Adherence to …

Molecular, socioeconomic, and clinical factors affecting racial and ethnic disparities in colorectal cancer survival

M Yousef, A Yousef, S Chowdhury… - JAMA …, 2024‏ - jamanetwork.com
Importance Disparity in overall survival (OS) and differences in the frequency of driver gene
variants by race and ethnicity have been separately observed in patients with colorectal …

Expanded carrier screening: What conditions should we screen for?

JD Goldberg, S Pierson… - Prenatal Diagnosis, 2023‏ - Wiley Online Library
Carrier screening tests reproductive couples for their risk of having children affected by
serious monogenic conditions. Carrier screening has historically been offered for certain …

Next generation sequencing is a highly reliable method to analyze exon 7 deletion of survival motor neuron 1 (SMN1) gene

S Zhao, Y Wang, X **n, Z Fang, L Fan, Z Peng… - Scientific Reports, 2022‏ - nature.com
Spinal muscular atrophy (SMA) is one of the most common and severe genetic diseases.
SMA carrier screening is an effective way to identify couples at risk of having affected …