HL7 FHIR-based tools and initiatives to support clinical research: a sco** review

SN Duda, N Kennedy, D Conway… - Journal of the …, 2022 - academic.oup.com
Abstract Objectives The HL7® fast healthcare interoperability resources (FHIR®)
specification has emerged as the leading interoperability standard for the exchange of …

Determining asthma endotypes and outcomes: Complementing existing clinical practice with modern machine learning

A Ray, J Das, SE Wenzel - Cell Reports Medicine, 2022 - cell.com
There is unprecedented opportunity to use machine learning to integrate high-dimensional
molecular data with clinical characteristics to accurately diagnose and manage disease …

What prevents us from reusing medical real-world data in research

J Gehrmann, E Herczog, S Decker, O Beyan - Scientific data, 2023 - nature.com
Medical real-world data stored in clinical systems represents a valuable knowledge source
for medical research, but its usage is still challenged by various technical and cultural …

[HTML][HTML] Initiatives, concepts, and implementation practices of the findable, accessible, interoperable, and reusable data principles in health data stewardship: Sco** …

ET Inau, J Sack, D Waltemath, AA Zeleke - Journal of Medical Internet …, 2023 - jmir.org
Background Thorough data stewardship is a key enabler of comprehensive health research.
Processes such as data collection, storage, access, sharing, and analytics require …

FAIR principles for AI models with a practical application for accelerated high energy diffraction microscopy

N Ravi, P Chaturvedi, EA Huerta, Z Liu, R Chard… - Scientific Data, 2022 - nature.com
A concise and measurable set of FAIR (Findable, Accessible, Interoperable and Reusable)
principles for scientific data is transforming the state-of-practice for data management and …

The burden of Chronic Pelvic Pain (CPP): Costs and quality of life of women and men with CPP treated in outpatient referral centers

D Hutton, A Mustafa, S Patil, S Rathod, G Shrikhande… - PLoS …, 2023 - journals.plos.org
Introduction Chronic Pelvic Pain (CPP) is a complex, multifaceted condition that affects both
women and men. There is limited literature on the cost utilization the healthcare system and …

[HTML][HTML] Privacy-preserving federated machine learning on FAIR health data: A real-world application

AA Sinaci, M Gencturk, C Alvarez-Romero… - Computational and …, 2024 - Elsevier
Objective This paper introduces a privacy-preserving federated machine learning (ML)
architecture built upon Findable, Accessible, Interoperable, and Reusable (FAIR) health …

[HTML][HTML] A data transformation methodology to create findable, accessible, interoperable, and reusable health data: software design, development, and evaluation …

AA Sinaci, M Gencturk, HA Teoman… - Journal of medical …, 2023 - jmir.org
Background Sharing health data is challenging because of several technical, ethical, and
regulatory issues. The Findable, Accessible, Interoperable, and Reusable (FAIR) guiding …

Addressing barriers in comprehensiveness, accessibility, reusability, interoperability and reproducibility of computational models in systems biology

A Niarakis, D Waltemath, J Glazier… - Briefings in …, 2022 - academic.oup.com
Computational models are often employed in systems biology to study the dynamic
behaviours of complex systems. With the rise in the number of computational models, finding …

FAIRness through automation: development of an automated medical data integration infrastructure for FAIR health data in a maximum care university hospital

M Parciak, M Suhr, C Schmidt, C Bönisch… - BMC Medical Informatics …, 2023 - Springer
Background Secondary use of routine medical data is key to large-scale clinical and health
services research. In a maximum care hospital, the volume of data generated exceeds the …