COVID-19 and people with intellectual disability: impacts of a pandemic

K Courtenay, B Perera - Irish journal of psychological medicine, 2020 - cambridge.org
The impacts of the COVID-19 pandemic affect all groups in society. People with intellectual
disability (ID) are especially vulnerable to the physical, mental and social effects of the …

Future planning among families of individuals with intellectual and developmental disabilities: A systematic review

C Lee, MM Burke - Journal of Policy and Practice in Intellectual …, 2020 - Wiley Online Library
Considering individuals with intellectual and developmental disabilities (IDD) are having
longer lives and outliving their parents, future planning has emerged as one of the most …

Primary care of adults with intellectual and developmental disabilities: 2018 Canadian consensus guidelines

WF Sullivan, H Diepstra, J Heng, S Ally, E Bradley… - Canadian Family …, 2018 - cfp.ca
Abstract Objective To update the 2011 Canadian guidelines for primary care of adults with
intellectual and developmental disabilities (IDD). Methods Family physicians and other …

Transition to adulthood for young people with intellectual disability: the experiences of their families

H Leonard, KR Foley, T Pikora, J Bourke… - European child & …, 2016 - Springer
Whilst the transition from school to adult roles can be challenging for any adolescent, for
those with an intellectual disability it can present as a particularly difficult time both for the …

Issues in caregiving for older people with intellectual disabilities and their ageing family carers: a review and commentary

A Ryan, L Taggart… - … journal of older …, 2014 - Wiley Online Library
Background In kee** with worldwide demographic changes and an ageing population,
people with intellectual disabilities are living longer and all the evidence suggest that this …

Identifying the correlates and barriers of future planning among parents of individuals with intellectual and developmental disabilities

M Burke, C Arnold, A Owen - Intellectual and …, 2018 - meridian.allenpress.com
Although individuals with intellectual and developmental disabilities (IDD) are living longer
lives, fewer than half of parents of individuals with IDD conduct future planning. The …

“What's going to happen when we're gone?” Family caregiving capacity for older people with an intellectual disability in Ireland

D Brennan, R Murphy, P McCallion… - Journal of Applied …, 2018 - Wiley Online Library
Background Changing family sociodemographic factors, increased life expectancy for
people with an intellectual disability, deinstitutionalization and policy prioritization of the …

Tolerating uncertainty: perceptions of the future for ageing parent carers and their adult children with intellectual disabilities

L Pryce, A Tweed, A Hilton… - Journal of Applied …, 2017 - Wiley Online Library
Background Improved life expectancy means that more adults with intellectual disabilities
are now living with ageing parents. This study explored older families' perceptions of the …

Exploring the needs of spousal, adult child, and adult sibling informal caregivers: a mixed-method systematic review

S Dang, A Looijmans, G Ferraris, G Lamura… - Frontiers in …, 2022 - frontiersin.org
Informal caregivers (ICGs) provide care to their family or friends in case of an illness,
disability, or frailty. The caregiving situation of informal caregivers may vary based on the …

Caregiving roles of siblings of adults with intellectual and developmental disabilities: A systematic review

C Lee, MM Burke - Journal of Policy and Practice in Intellectual …, 2018 - Wiley Online Library
As individuals with intellectual and developmental disabilities (I/DD) grow older, many
siblings anticipate becoming caregivers for their brothers and sisters with I/DD. However …