Patient engagement in research: a systematic review

JP Domecq, G Prutsky, T Elraiyah, Z Wang… - BMC health services …, 2014 - Springer
Background A compelling ethical rationale supports patient engagement in healthcare
research. It is also assumed that patient engagement will lead to research findings that are …

Map** the impact of patient and public involvement on health and social care research: a systematic review

JO Brett, S Staniszewska, C Mockford… - Health …, 2014 - Wiley Online Library
Background There is an increasing international interest in patient and public involvement
(PPI) in research, yet relatively little robust evidence exists about its impact on health and …

Evaluating the “return on patient engagement initiatives” in medicines research and development: a literature review

LE Vat, T Finlay… - Health …, 2020 - Wiley Online Library
Background Showing how engagement adds value for all stakeholders can be an effective
motivator for broader implementation of patient engagement. However, it is unclear what …

Public involvement at the design stage of primary health research: a narrative review of case examples

J Boote, W Baird, C Beecroft - Health policy, 2010 - Elsevier
OBJECTIVE: To review published examples of public involvement in research design, to
synthesise the contributions made by members of the public, as well as the identified …

Toward integration of mHealth in primary care in the Netherlands: a qualitative analysis of stakeholder perspectives

ELS Bally, T Cesuroglu - Frontiers in public health, 2020 - frontiersin.org
Background: There is a growing need to structurally change the way chronic illness care is
organized as health systems struggle to meet the demand for chronic care. mHealth …

[HTML][HTML] Research priorities to address the global burden of chronic obstructive pulmonary disease (COPD) in the next decade

D Adeloye, D Agarwal, PJ Barnes, M Bonay… - Journal of global …, 2021 - ncbi.nlm.nih.gov
Background The global prevalence of chronic obstructive pulmonary disease (COPD) has
increased markedly in recent decades. Given the scarcity of resources available to address …

Patients' priorities for health research: focus group study of patients with chronic kidney disease

A Tong, P Sainsbury, SM Carter, B Hall… - Nephrology Dialysis …, 2008 - academic.oup.com
Background. The inclusion of consumer preferences in prioritizing research topics is widely
advocated, but prioritization is driven largely by professional agendas. Methods. Patients …

Research priority setting in kidney disease: a systematic review

A Tong, S Chando, S Crowe, B Manns… - American Journal of …, 2015 - Elsevier
Background Resources for research are insufficient to cover all unanswered questions, and
therefore difficult choices about allocation must be made. Recently there has been a move …

From tokenism to meaningful engagement: best practices in patient involvement in an EU project

D Supple, A Roberts, V Hudson, S Masefield… - Research Involvement …, 2015 - Springer
Plain English summary This commentary talks about patient involvement in one of the
biggest EU projects to date—U-BIOPRED. It describes how people and carers of people with …

Can the impact of public involvement on research be evaluated? A mixed methods study

R Barber, JD Boote, GD Parry, CL Cooper… - Health …, 2012 - Wiley Online Library
Background Public involvement is central to health and social research policies, yet few
systematic evaluations of its impact have been carried out, raising questions about the …