Ethics review of big data research: What should stay and what should be reformed?

A Ferretti, M Ienca, M Sheehan, A Blasimme… - BMC medical …, 2021 - Springer
Background Ethics review is the process of assessing the ethics of research involving
humans. The Ethics Review Committee (ERC) is the key oversight mechanism designated to …

Short-term prediction of suicidal thoughts and behaviors in adolescents: Can recent developments in technology and computational science provide a breakthrough?

NB Allen, BW Nelson, D Brent, RP Auerbach - Journal of affective disorders, 2019 - Elsevier
Background Suicide is one of the leading causes of death among adolescents, and
develo** effective methods to improve short-term prediction of suicidal thoughts and …

Using social media for health research: Methodological and ethical considerations for recruitment and intervention delivery

D Arigo, S Pagoto, L Carter-Harris, SE Lillie… - Digital …, 2018 - journals.sagepub.com
As the popularity and diversity of social media platforms increases so does their utility for
health research. Using social media for recruitment into clinical studies and/or delivering …

Precision health: the role of the social and behavioral sciences in advancing the vision

E Hekler, JA Tiro, CM Hunter… - Annals of Behavioral …, 2020 - academic.oup.com
Abstract Background In 2015, Collins and Varmus articulated a vision for precision medicine
emphasizing molecular characterization of illness to identify actionable biomarkers to …

2017 Roadmap for innovation—ACC health policy statement on healthcare transformation in the era of digital health, big data, and precision health: a report of the …

SP Bhavnani, K Parakh, A Atreja, R Druz… - Journal of the American …, 2017 - jacc.org
Healthcare transformation is the product of a shared vision between a broad range of
stakeholders to establish the future of care delivery and to develop new patient-centered …

[HTML][HTML] Ethical issues for direct-to-consumer digital psychotherapy apps: addressing accountability, data protection, and consent

N Martinez-Martin, K Kreitmair - JMIR mental health, 2018 - mental.jmir.org
This paper focuses on the ethical challenges presented by direct-to-consumer (DTC) digital
psychotherapy services that do not involve oversight by a professional mental health …

A geoprivacy manifesto

C Keßler, G McKenzie - Transactions in GIS, 2018 - Wiley Online Library
As location‐enabled technologies are becoming ubiquitous, our location is being shared
with an ever‐growing number of external services. Issues revolving around location privacy …

Understanding behaviours in context using mobile sensing

GM Harari, SD Gosling - Nature Reviews Psychology, 2023 - nature.com
Mobile sensing refers to the collection of methods by which researchers derive measures of
human behaviours and contexts from the onboard sensors and logs found in smartphones …

Longform recordings of everyday life: Ethics for best practices

M Cychosz, R Romeo, M Soderstrom, C Scaff… - Behavior research …, 2020 - Springer
Recent advances in large-scale data storage and processing offer unprecedented
opportunities for behavioral scientists to collect and analyze naturalistic data, including from …

[HTML][HTML] Patient perspectives and preferences for consent in the digital health context: State-of-the-art literature review

I Kassam, D Ilkina, J Kemp, H Roble… - Journal of medical …, 2023 - jmir.org
Background The increasing integration of digital health tools into care may result in a greater
flow of personal health information (PHI) between patients and providers. Although privacy …