The evolution of Patient-Generated Health Data (PGHD) represents a major shift in
healthcare, fueled by technological progress. The advent of PGHD, with technologies such …

Objective Data quality (DQ) must be consistently defined in context. The attributes, metadata,
and context of longitudinal real-world data (RWD) have not been formalized for quality …

Background: Secondary use of health data has reached unequaled potential to improve
health systems governance, knowledge, and clinical care. Transparency regarding this …

Objective: To create practical recommendations for the curation of routinely collected health
data and artificial intelligence (AI) in primary care with a focus on ensuring their ethical use …

Background Clinical data sharing is common and necessary for patient care, research,
public health, and innovation. However, the term “data sharing” is often ambiguous in its …

Background Electronic patient record (EPR) technology is a key enabler for improvements to
healthcare service and management. To ensure these improvements and the means to …

Background This manuscript presents a framework to guide the identification and
assessment of ethical opportunities and challenges associated with electronic patient …

Objective We describe current practices of ethics-related data governance in large neuro-
ICT projects, identify gaps in current practice, and put forward recommendations on how to …

Objective Develo** effective and reliable rule-based clinical decision support (CDS) alerts
and reminders is challenging. Using a previously developed taxonomy for alert …

Background: Medical informatics, or biomedical and health informatics (BMHI), has become
an established scientific discipline. In all such disciplines there is a certain inertia to persist …