Multilevel barriers and facilitators of communication in pediatric oncology: A systematic review

BA Sisk, K Harvey, AB Friedrich, AL Antes… - Pediatric blood & …, 2022 - Wiley Online Library
Multiple factors can facilitate or impede the fulfillment of communication functions in pediatric
cancer. In this systematic review, we evaluated 109 studies from the preceding 20 years that …

Communication interventions in adult and pediatric oncology: a sco** review and analysis of behavioral targets

BA Sisk, GL Schulz, JW Mack, L Yaeger, J DuBois - PLoS One, 2019 - journals.plos.org
Background Improving communication requires that clinicians and patients change their
behaviors. Interventions might be more successful if they incorporate principles from …

Communication about prognosis with adolescent and young adult patients with cancer: information needs, prognostic awareness, and outcomes of disclosure

JW Mack, KM Fasciano, SD Block - Journal of Clinical Oncology, 2018 - ascopubs.org
Purpose Communication about prognosis affects decisions patients and family members
make about cancer care, and most patients say they want to know about their chances of …

Facilitators associated with building and sustaining therapeutic alliance in advanced pediatric cancer

EC Kaye, S Rockwell, C Woods, ME Lemmon… - JAMA network …, 2021 - jamanetwork.com
Importance Therapeutic alliance is a core component of patient-and family-centered care,
particularly in the setting of advancing cancer. Communication approaches used by …

Oncology clinicians' perspectives on online patient portal use in pediatric and adolescent cancer

BA Sisk, C Bereitschaft, M Enloe, G Schulz… - JCO clinical cancer …, 2023 - ascopubs.org
PURPOSE Online patient portals represent widely available communication tools in
pediatric oncology. Previous studies have not evaluated clinicians' perspectives on portal …

The evolution of regret: decision-making for parents of children with cancer

BA Sisk, TI Kang, JW Mack - Supportive Care in Cancer, 2020 - Springer
Purpose Parents of children with cancer make treatment decisions in highly emotional states
while feeling overwhelmed with information. In previous work, 1 in 6 parents demonstrated …

Bereaved parents, hope, and realism

EC Kaye, A Kiefer, L Blazin, H Spraker-Perlman… - …, 2020 - publications.aap.org
Parents of children with serious illness often maintain hope across a child's illness journey.
Historically, the conflict between parental hope and prognostic acceptance has been …

Understanding parents' communication experiences in childhood cancer: a qualitative exploration and model for future research

J Baenziger, K Hetherington, CE Wakefield… - Supportive Care in …, 2020 - Springer
Purpose Following their child's cancer diagnosis, parents must rapidly familiarize
themselves with cancer-specific information and the health-care setting. Theory-driven …

Prognostic communication between oncologists and parents of children with advanced cancer

EC Kaye, M Stall, C Woods, S Velrajan, M Gattas… - …, 2021 - publications.aap.org
METHODS: In this prospective, longitudinal, mixed-methods study, serial disease
reevaluation conversations were audio recorded across an advancing illness course for …

Parent and physician understanding of prognosis in hospitalized children with advanced heart disease

E Morell, MK Miller, M Lu, KG Friedman… - Journal of the …, 2021 - Am Heart Assoc
Background The unpredictable trajectory of pediatric advanced heart disease makes
prognostication difficult for physicians and informed decision‐making challenging for …