Patient and service user engagement in research: a systematic review and synthesized framework
ND Shippee, JP Domecq Garces… - Health …, 2015 - Wiley Online Library
Background There is growing attention towards increasing patient and service user
engagement (PSUE) in biomedical and health services research. Existing variations in …
engagement (PSUE) in biomedical and health services research. Existing variations in …
Service user involvement in nursing, midwifery and health visiting research: a review of evidence and practice
E Smith, F Ross, S Donovan, J Manthorpe… - International journal of …, 2008 - Elsevier
OBJECTIVES: In the UK policy recommends that service users (patients, carers and the
public) should be involved in all publicly funded health and social care research. However …
public) should be involved in all publicly funded health and social care research. However …
Inclusion of patient-reported outcome measures in registered clinical trials: evidence from ClinicalTrials. gov (2007–2013)
Abstract Background Patient reported outcomes (PROs) have gained a prominent place in
clinical research. Previous estimates suggest that PRO measures are used in 14% of clinical …
clinical research. Previous estimates suggest that PRO measures are used in 14% of clinical …
Reasons for participating in randomised controlled trials: conditional altruism and considerations for self
SK McCann, MK Campbell, VA Entwistle - Trials, 2010 - Springer
Background Randomised controlled trials of healthcare interventions depend on the
participation of volunteers who might not derive any personal health benefit from their …
participation of volunteers who might not derive any personal health benefit from their …
[LIBRO][B] Guide to the de-identification of personal health information
K El Emam - 2013 - books.google.com
Offering compelling practical and legal reasons why de-identification should be one of the
main approaches to protecting patients' privacy, this book outlines a proven, risk-based …
main approaches to protecting patients' privacy, this book outlines a proven, risk-based …
Recruitment of minority and underserved populations in the United States: the Centers for Population Health and Health Disparities experience
OBJECTIVE: The recruitment of minority and underserved individuals to research studies is
often problematic. The purpose of this study was to describe the recruitment experiences of …
often problematic. The purpose of this study was to describe the recruitment experiences of …
“We're checking them out”: Indigenous and non-Indigenous research participants' accounts of deciding to be involved in research
Background It is important for researchers to understand the motivations and decision-
making processes of participants who take part in their research. This enables robust …
making processes of participants who take part in their research. This enables robust …
A systematic review highlights threats to validity in studies of barriers to cancer trial participation
D Fayter, C McDaid, A Eastwood - Journal of clinical epidemiology, 2007 - Elsevier
OBJECTIVE: To investigate the barriers, modifiers, and benefits involved in participating in
randomized controlled trials of cancer therapies as perceived by health care providers and …
randomized controlled trials of cancer therapies as perceived by health care providers and …
Trials need participants but not their feedback? A sco** review of published papers on the measurement of participant experience of taking part in clinical trials
Background Participant recruitment and retention are long-standing problems in clinical
trials. Although there are a large number of factors impacting on recruitment and retention …
trials. Although there are a large number of factors impacting on recruitment and retention …
Assessment of patients' willingness to participate in a randomized trial of spinal versus general anesthesia for lumbar spine surgery
Background Prospective nonrandomized studies have found less postoperative fatigue and
improved quality of life in patients undergoing awake spine surgery under spinal anesthesia …
improved quality of life in patients undergoing awake spine surgery under spinal anesthesia …