Improvements in the function, quality of life, and longevity of patients with Duchenne
muscular dystrophy (DMD) have been achieved through a multidisciplinary approach to …

Recently, the FDA has encouraged testing of medications among pediatric patients during
drug development. Pharmaceutical companies have responded by conducting more clinical …

Introduction Parent caregivers of children who require lifesaving medical technology (eg,
mechanical ventilation, feeding tubes) must constantly maintain vigilance. Poor physical and …

Background. Pediatric patients' self-report of health-related quality of life (HRQOL) has
emerged as an important patient-based health outcome. A practical, validated generic …

Objective: To identify currently available generic and disease‐specific health‐related quality
of life (HRQOL) instruments for children and adolescents up to 19 years old, to describe their …

AIMS To identify currently available generic and disease specific measures of quality of life
(QoL) for work with children; and make recommendations about the future development and …

Critical illness is a life-changing event for patients and their families. As mortality has
declined, many survivors experience new and persistent impairments in physical …

Adherence improvement strategies can be broadly classified as educational, organizational,
and behavioral (Dunbar et al., Behavioral strategies for improving compliance. In …

Objective. To present an epidemiologic profile of children with special health care needs
using a new definition of the population developed by the federal Maternal and Child Health …

Objectives: In-hospital pediatric sepsis mortality has decreased substantially, but long-term
mortality and morbidity among children initially surviving sepsis, is unknown. Accordingly …