Adolescents with a chronic condition: challenges living, challenges treating

SM Sawyer, S Drew, MS Yeo, MT Britto - The Lancet, 2007 - thelancet.com
In this review, we aim to focus attention on the interaction between adolescents with chronic
conditions and the health systems that support them. At least 12% of adolescents live with a …

The relationship between parent distress and child quality of life in pediatric cancer: A meta-analysis

DM Bakula, CM Sharkey, MN Perez… - Journal of pediatric …, 2020 - Elsevier
Problem Pediatric cancer places both parents and children at risk for psychosocial
difficulties, including a specific risk for diminished quality of life. Previous research has …

Physical activity moderates the association between parenting stress and quality of life in working mothers during the COVID-19 pandemic

CA Limbers, C McCollum, E Greenwood - Mental Health and Physical …, 2020 - Elsevier
Statement of problem Working mothers are a population experiencing heightened levels of
parenting stress during the COVID-19 pandemic. The purpose of the current study was to …

Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) generic core scales

J Cremeens, C Eiser, M Blades - Health and quality of life outcomes, 2006 - Springer
Background In situations where children are unable or unwilling to respond for themselves,
measurement of quality of life (QOL) is often obtained by parent proxy-report. However the …

Impact of caring for a child with cancer on parents' health-related quality of life

AF Klassen, R Klaassen, D Dix, S Pritchard… - Journal of clinical …, 2008 - ascopubs.org
Purpose To compare the health-related quality of life (QOL) of parents of children who are
undergoing treatment for cancer with that of Canadian population norms and to identify …

Parent-reported quality of life of children with cerebral palsy in Europe

C Arnaud, M White-Koning, SI Michelsen, J Parkes… - …, 2008 - publications.aap.org
OBJECTIVE. The goal was to determine whether the type and severity of the child's
impairments and the family's psychosocial, social, and economic characteristics influence …

Pain in children with cancer: prevalence, characteristics, and parent management

PR Tutelman, CT Chambers, JN Stinson… - The Clinical journal …, 2018 - journals.lww.com
Objectives: Pain is a common and distressing symptom of pediatric cancer, as reported by
both children and their parents. Increasingly, children with cancer are cared for as …

Determinants of child-parent agreement in quality-of-life reports: a European study of children with cerebral palsy

M White-Koning, C Arnaud, HO Dickinson… - …, 2007 - publications.aap.org
OBJECTIVES. The differences between child self-reports and parent proxy reports of quality
of life in a large population of children with cerebral palsy were studied. We examined …

Co** with pediatric cancer: Strategies employed by children and their parents to manage cancer-related stressors during treatment

AK Hildenbrand, KJ Clawson… - Journal of Pediatric …, 2011 - journals.sagepub.com
Pediatric cancer patients and their families face significant physical, emotional, and
psychosocial challenges. Few studies have investigated how children manage these …

Longitudinal development of cancer‐related fatigue and physical activity in childhood cancer patients

EM Van Dijk‐Lokkart, LMH Steur… - Pediatric blood & …, 2019 - Wiley Online Library
Purpose Cancer‐related fatigue is one of the most distressing side effects of childhood
cancer treatment. Physical activity can decrease fatigue and has positive effects on other …