Basic principles of biobanking: from biological samples to precision medicine for patients
L Annaratone, G De Palma, G Bonizzi, A Sapino… - Virchows Archiv, 2021 - Springer
The term “biobanking” is often misapplied to any collection of human biological materials
(biospecimens) regardless of requirements related to ethical and legal issues or the …
(biospecimens) regardless of requirements related to ethical and legal issues or the …
The FAIR guiding principles for data stewardship: fair enough?
M Boeckhout, GA Zielhuis… - European journal of human …, 2018 - nature.com
The FAIR guiding principles for research data stewardship (findability, accessibility,
interoperability, and reusability) look set to become a cornerstone of research in the life …
interoperability, and reusability) look set to become a cornerstone of research in the life …
The European genome-phenome archive in 2021
Abstract The European Genome-phenome Archive (EGA-https://ega-archive. org/) is a
resource for long term secure archiving of all types of potentially identifiable genetic …
resource for long term secure archiving of all types of potentially identifiable genetic …
The LifeCycle Project-EU Child Cohort Network: a federated analysis infrastructure and harmonized data of more than 250,000 children and parents
VWV Jaddoe, JF Felix, AMN Andersen… - European journal of …, 2020 - Springer
Early life is an important window of opportunity to improve health across the full lifecycle. An
accumulating body of evidence suggests that exposure to adverse stressors during early life …
accumulating body of evidence suggests that exposure to adverse stressors during early life …
The 1000IBD project: multi-omics data of 1000 inflammatory bowel disease patients; data release 1
Background Inflammatory bowel disease (IBD) is a chronic complex disease of the
gastrointestinal tract. Patients with IBD can experience a wide range of symptoms, but the …
gastrointestinal tract. Patients with IBD can experience a wide range of symptoms, but the …
Leveraging European infrastructures to access 1 million human genomes by 2022
Human genomics is undergoing a step change from being a predominantly research-driven
activity to one driven through health care as many countries in Europe now have nascent …
activity to one driven through health care as many countries in Europe now have nascent …
[HTML][HTML] Position paper on management of personal data in environment and health research in Europe
Management of datasets that include health information and other sensitive personal
information of European study participants has to be compliant with the General Data …
information of European study participants has to be compliant with the General Data …
[HTML][HTML] Biobanks for life sciences and personalized medicine: importance of standardization, biosafety, biosecurity, and data management
Biological samples such as tissues, blood and other body fluids, plants or seeds, prokaryotic
and eukaryotic cells or isolated biomolecules as well as associated data are the essential …
and eukaryotic cells or isolated biomolecules as well as associated data are the essential …
Applied molecular-based quality control of biobanked samples for multi-omics approach
A Michalska-Falkowska, J Niklinski, H Juhl, A Sulewska… - Cancers, 2023 - mdpi.com
Simple Summary This study highlights the significance of quality assurance in biobanking
facilities, specifically in the context of high-throughput research and novel molecular …
facilities, specifically in the context of high-throughput research and novel molecular …
Getting your DUCs in a row-standardising the representation of Digital Use Conditions
Improving patient care and advancing scientific discovery requires responsible sharing of
research data, healthcare records, biosamples, and biomedical resources that must also …
research data, healthcare records, biosamples, and biomedical resources that must also …