The palliative care needs of adults with intellectual disabilities and their access to palliative care services: A systematic review

E Adam, KE Sleeman, S Brearley, K Hunt… - Palliative …, 2020 - journals.sagepub.com
Background: There is evidence that people with intellectual disabilities experience
healthcare inequalities, including access to specialist palliative care, but to date, there has …

Access to general practice for people with intellectual disability in Australia: a systematic sco** review

B Shea, J Bailie, SH Dykgraaf, N Fortune, N Lennox… - BMC Primary …, 2022 - Springer
Background People with intellectual disability experience inadequate access to general
practice and poorer health outcomes than the general population. While some access …

[HTML][HTML] Barriers to palliative care access in patients with intellectual disability: a sco** review

J Velepucha-Iniguez, PB Sierra, E Bruera - Journal of pain and symptom …, 2022 - Elsevier
There is limited knowledge about inequalities regarding palliative care access among
patients with intellectual disability. The present sco** review aimed to identify the existing …

Caregiving, employment and social isolation: challenges for rural carers in Australia

R Hussain, S Wark, P Ryan - … of environmental research and public health, 2018 - mdpi.com
Australia has one of the world's highest life expectancy rates, and there is a rapidly growing
need for informal caregivers to support individuals who are ageing, have chronic illness or a …

[HTML][HTML] Cognitive and functional evolution in older adults with and without intellectual disability using a multicomponent intervention: A prospective longitudinal study

E Calatayud, B Oliván-Blázquez, MS Peña… - Experimental …, 2024 - Elsevier
Background The global population is experiencing accelerated biopsychosocial aging.
Cognitive impairment is frequently associated with functional impairment in basic and …

Challenges and opportunities for improvement when people with an intellectual disability or serious mental illness also need palliative care: A qualitative meta …

N Ashok, D Hughes, S Yardley - Palliative medicine, 2023 - journals.sagepub.com
Background: People with diagnoses of intellectual disability or serious mental illness have
higher mortality rates due to physical comorbidities; better understanding is needed to guide …

What constitutes good quality end‐of‐life care? Perspectives of people with intellectual disabilities and their families

K Cithambarm, M Duffy… - Journal of Policy and …, 2021 - Wiley Online Library
Background Due to increased life expectancy, just as with the general population, people
with intellectual disabilities are experiencing, and dying from, chronic and life‐limiting …

“It was one of those complicated cases”: health practitioners' perspectives and practices of providing end-of-life care for people with profound intellectual and multiple …

H Voss, A Loxton, J Anderson, J Watson - BMC palliative care, 2021 - Springer
Background Due to developments in health and social care, people with profound
intellectual and multiple disability (PIMD) are living longer than ever before, meaning they …

Creating person-centred support for people with intellectual disabilities at the end of life: An Australian qualitative study of unmet needs and strategies

B McNamara, A Same… - Journal of Intellectual …, 2020 - journals.sagepub.com
Background: People with intellectual disabilities at the end of life are at risk of receiving
inadequate and inequitable end-of-life care. This study explores their unmet needs …

Excellence in palliative and end-of-life care provision for people with intellectual disability

I Tuffrey-Wijne, J Davidson - International Journal of Palliative …, 2018 - magonlinelibrary.com
Background: People with an intellectual disability experience significant inequalities in end-
of-life and palliative care provision. Aims: To identify the key characteristics of practice …