[HTML][HTML] Management of sickle cell disease from childhood through adulthood

J Kanter, R Kruse-Jarres - Blood reviews, 2013 - Elsevier
Sickle cell disease (SCD) is a genetic disorder characterised by anaemia and “sickling” of
red blood cells, leading to chronic haemolytic anaemia, vascular injury, and organ …

Transition and sickle cell disease

MR DeBaun, J Telfair - Pediatrics, 2012 - publications.aap.org
Sickle cell disease (SCD), the most common genetic disease screened for in the newborn
period, occurs in∼ 1 in 2400 newborns in the general population and 1 in 400 individuals of …

The relationship between frequency and severity of vaso-occlusive crises and health-related quality of life and work productivity in adults with sickle cell disease

AA Rizio, M Bhor, X Lin, KL McCausland… - Quality of Life …, 2020 - Springer
Purpose Patients with sickle cell disease (SCD) may experience sickle cell-related pain
crises, also referred to as vaso-occlusive crises (VOCs), which are a substantial cause of …

A program of transition to adult care for sickle cell disease

AC Saulsberry, JS Porter… - Hematology 2014, the …, 2019 - ashpublications.org
Most children with sickle cell disease (SCD) today survive into adulthood. Among emerging
adults, there is a marked increase in acute care utilization and a rise in mortality, which can …

Transitioning adolescents and young adults with sickle cell disease from pediatric to adult health care: provider perspectives

NB Stollon, CW Paine, E Rabelais… - Journal of pediatric …, 2015 - journals.lww.com
The transition from pediatric to adult health care is often challenging for adolescents and
young adults with sickle cell disease (SCD). Our study aimed to identify (1) measures of …

Systematic review of transition from adolescent to adult care in patients with sickle cell disease

L Jordan, P Swerdlow, TD Coates - Journal of pediatric …, 2013 - journals.lww.com
Awareness and practice of appropriate treatment for childhood sickle cell disease (SCD) has
improved, and survival rates have increased significantly. Today, most patients will …

Managing the cerebrovascular complications of sickle cell disease: current perspectives

J Light, M Boucher, J Baskin-Miller… - Journal of Blood …, 2023 - Taylor & Francis
The importance of protecting brain function for people with sickle cell disease (SCD) cannot
be overstated. SCD is associated with multiple cerebrovascular complications that threaten …

Comorbidity, pain, utilization, and psychosocial outcomes in older versus younger sickle cell adults: the PiSCES project

DK McClish, WR Smith, JL Levenson… - BioMed research …, 2017 - Wiley Online Library
Background. Patients with SCD now usually live well into adulthood. Whereas transitions
into adulthood are now often studied, little is published about aging beyond the transition …

Transition from paediatric to adult care for patients with sickle cell disease

M de Montalembert, C Guitton… - British journal of …, 2014 - Wiley Online Library
Advances achieved over the last three decades have transformed sickle cell disease (SCD)
from a fatal childhood disease to a long‐term chronic condition. Consequently, patients must …

Not being heard: barriers to high quality unplanned hospital care during young people's transition to adult services–evidence from 'this sickle cell life'research

A Renedo, S Miles, S Chakravorty, A Leigh… - BMC Health Services …, 2019 - Springer
Background Young people's experiences of healthcare as they move into adult services can
have a major impact on their health, and the transition period for young people with sickle …