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[HTML][HTML] Management of sickle cell disease from childhood through adulthood
J Kanter, R Kruse-Jarres - Blood reviews, 2013 - Elsevier
Sickle cell disease (SCD) is a genetic disorder characterised by anaemia and “sickling” of
red blood cells, leading to chronic haemolytic anaemia, vascular injury, and organ …
red blood cells, leading to chronic haemolytic anaemia, vascular injury, and organ …
Transition and sickle cell disease
MR DeBaun, J Telfair - Pediatrics, 2012 - publications.aap.org
Sickle cell disease (SCD), the most common genetic disease screened for in the newborn
period, occurs in∼ 1 in 2400 newborns in the general population and 1 in 400 individuals of …
period, occurs in∼ 1 in 2400 newborns in the general population and 1 in 400 individuals of …
The relationship between frequency and severity of vaso-occlusive crises and health-related quality of life and work productivity in adults with sickle cell disease
AA Rizio, M Bhor, X Lin, KL McCausland… - Quality of Life …, 2020 - Springer
Purpose Patients with sickle cell disease (SCD) may experience sickle cell-related pain
crises, also referred to as vaso-occlusive crises (VOCs), which are a substantial cause of …
crises, also referred to as vaso-occlusive crises (VOCs), which are a substantial cause of …
A program of transition to adult care for sickle cell disease
AC Saulsberry, JS Porter… - Hematology 2014, the …, 2019 - ashpublications.org
Most children with sickle cell disease (SCD) today survive into adulthood. Among emerging
adults, there is a marked increase in acute care utilization and a rise in mortality, which can …
adults, there is a marked increase in acute care utilization and a rise in mortality, which can …
Transitioning adolescents and young adults with sickle cell disease from pediatric to adult health care: provider perspectives
NB Stollon, CW Paine, E Rabelais… - Journal of pediatric …, 2015 - journals.lww.com
The transition from pediatric to adult health care is often challenging for adolescents and
young adults with sickle cell disease (SCD). Our study aimed to identify (1) measures of …
young adults with sickle cell disease (SCD). Our study aimed to identify (1) measures of …
Systematic review of transition from adolescent to adult care in patients with sickle cell disease
L Jordan, P Swerdlow, TD Coates - Journal of pediatric …, 2013 - journals.lww.com
Awareness and practice of appropriate treatment for childhood sickle cell disease (SCD) has
improved, and survival rates have increased significantly. Today, most patients will …
improved, and survival rates have increased significantly. Today, most patients will …
Managing the cerebrovascular complications of sickle cell disease: current perspectives
J Light, M Boucher, J Baskin-Miller… - Journal of Blood …, 2023 - Taylor & Francis
The importance of protecting brain function for people with sickle cell disease (SCD) cannot
be overstated. SCD is associated with multiple cerebrovascular complications that threaten …
be overstated. SCD is associated with multiple cerebrovascular complications that threaten …
Comorbidity, pain, utilization, and psychosocial outcomes in older versus younger sickle cell adults: the PiSCES project
DK McClish, WR Smith, JL Levenson… - BioMed research …, 2017 - Wiley Online Library
Background. Patients with SCD now usually live well into adulthood. Whereas transitions
into adulthood are now often studied, little is published about aging beyond the transition …
into adulthood are now often studied, little is published about aging beyond the transition …
Transition from paediatric to adult care for patients with sickle cell disease
M de Montalembert, C Guitton… - British journal of …, 2014 - Wiley Online Library
Advances achieved over the last three decades have transformed sickle cell disease (SCD)
from a fatal childhood disease to a long‐term chronic condition. Consequently, patients must …
from a fatal childhood disease to a long‐term chronic condition. Consequently, patients must …
Not being heard: barriers to high quality unplanned hospital care during young people's transition to adult services–evidence from 'this sickle cell life'research
Background Young people's experiences of healthcare as they move into adult services can
have a major impact on their health, and the transition period for young people with sickle …
have a major impact on their health, and the transition period for young people with sickle …