The role of sensory changes in everyday technology use by people with mild to moderate dementia

E Dixon, A Lazar - Proceedings of the 22nd International ACM …, 2020 - dl.acm.org
Technology design for dementia primarily focuses on cognitive needs. This includes
providing task support, accommodating memory changes, and simplifying interfaces by …

Use of critical race theory to inform the recruitment of Black/African American Alzheimer's disease caregivers into community-based research

LJ Parker, JE Gaugler, LN Gitlin - The Gerontologist, 2022 - academic.oup.com
Nearly 30 years after the 1993 National Institute of Health (NIH) Revitalization Act, which
required the inclusion of women and racial/ethnic minority groups into government-funded …

Earning the trust of African American communities to increase representation in dementia research

E Portacolone, N Palmer, P Lichtenberg… - Innovation in …, 2020 - academic.oup.com
Abstract Black/African American populations are underrepresented as participants in
dementia research. A major barrier to participation of African American older adults in …

“Taking care of myself as long as I can”: How people with dementia configure self-management systems

E Dixon, AM Piper, A Lazar - Proceedings of the 2021 CHI Conference …, 2021 - dl.acm.org
Self-management research in HCI has addressed a variety of conditions. Yet, this literature
has largely focused on neurotypical populations and chronic conditions that can be …

[HTML][HTML] Examining the Role of Community Engagement in Enhancing the Participation of Racial and Ethnic Minoritized Communities in Alzheimer's Disease Clinical …

S Dabiri, R Raman, J Grooms… - The Journal of Prevention …, 2024 - Elsevier
Background Despite higher dementia prevalence in racial and ethnic minoritized
communities, they are underrepresented in Alzheimer's disease clinical trials. Community …

Understanding how sensory changes experienced by individuals with a range of age-related cognitive changes can affect technology use

E Dixon, J Anderson, A Lazar - ACM Transactions on Accessible …, 2022 - dl.acm.org
Clinical researchers have identified sensory changes people with age-related cognitive
changes, such as dementia and mild cognitive impairment, experience that are different from …

A Protocol for the Inclusion of Minoritized Persons in Alzheimer Disease Research From the ADNI3 Diversity Taskforce

OC Okonkwo, MR Mindt, MT Ashford, C Conti… - JAMA network …, 2024 - jamanetwork.com
Importance Black or African American (hereinafter, Black) and Hispanic or Latino/a/x
(hereinafter, Latinx) adults are disproportionally affected by Alzheimer disease, but most …

Digital culturally tailored marketing for enrolling Latino participants in a web‐based registry: Baseline metrics from the Brain Health Registry

MT Ashford, MR Camacho, C **… - Alzheimer's & …, 2023 - Wiley Online Library
Introduction This culturally tailored enrollment effort aims to determine the feasibility of
enrolling 5000 older Latino adults from California into the Brain Health Registries (BHR) …

The Community Engaged Digital Alzheimer's Research (CEDAR) Study: A Digital Intervention to Increase Research Participation of Black American Participants in the …

MR Mindt, MT Ashford, D Zhu, H Cham… - The journal of …, 2023 - Springer
Abstract Background Although Black/African American older adults bear significant
inequities in prevalence, incidence, and outcomes of Alzheimer's disease and related …

How do we promote health?: From the words of African American older adults with dementia and their family members

F Epps, L Skemp, JK Specht - Research in gerontological …, 2016 - journals.healio.com
As population diversity increases, understanding what health promotion means to ethnically
diverse older adults and their family members aids in the design of health programming …