Evidence-based recommendations for the organization of long-term follow-up care for childhood and adolescent cancer survivors: a report from the PanCareSurFup …

G Michel, RL Mulder, HJH van der Pal… - Journal of Cancer …, 2019 - Springer
Purpose To facilitate the implementation of long-term follow-up (LTFU) care and improve
equality of care for childhood, adolescent, and young adult (CAYA) cancer survivors, the …

Transition of care for young adult survivors of childhood and adolescent cancer: rationale and approaches

DR Freyer - Journal of Clinical Oncology, 2010 - ascopubs.org
Purpose Young adult survivors of childhood and adolescent cancer are an ever-growing
population of patients, many of whom remain at lifelong risk for potentially serious …

Risk stratification of childhood cancer survivors necessary for evidence-based clinical long-term follow-up

C Frobisher, A Glaser, GA Levitt, DJ Cutter… - British journal of …, 2017 - nature.com
Background: Reorganisation of clinical follow-up care in England was proposed by the
National Cancer Survivorship Initiative (NCSI), based on cancer type and treatment, ranging …

Current pediatric cancer survivorship practices: a report from the Children's Oncology Group

KE Effinger, R Haardörfer, JG Marchak… - Journal of Cancer …, 2023 - Springer
Purpose The purpose of this study is to describe current survivor services provided by COG
institutions. Methods A 190-question online survey was distributed to 209 COG member …

[HTML][HTML] Cancer survivorship care: person centered care in a multidisciplinary shared care model

JJ Loonen, NMA Blijlevens, J Prins… - … journal of integrated …, 2018 - ncbi.nlm.nih.gov
Survivors of childhood and adult-onset cancer are at lifelong risk for the development of late
effects of treatment that can lead to serious morbidity and premature mortality. Regular long …

Long-term follow-up of children treated for cancer: why is it necessary, by whom, where and how?

R Skinner, WHB Wallace, G Levitt - Archives of Disease in Childhood, 2007 - adc.bmj.com
About 1 in 715 young adults is a survivor of childhood malignancy, but these individuals are
at increased risk of considerable treatment-related morbidity or even mortality. A recent …

Beyond survival: quality of life and follow-up after childhood cancer

C Eiser - Journal of Pediatric Psychology, 2007 - academic.oup.com
Objectives To discuss (a) the impact of late physical and psychological effects on quality of
life (QOL) among survivors of childhood cancer,(b) the rationale for providing follow-up care …

Advancing a comprehensive cancer care agenda for children and their families: I nstitute of M edicine W orkshop highlights and next steps

R Kirch, G Reaman, C Feudtner… - CA: a cancer journal …, 2016 - Wiley Online Library
This article highlights key findings from the “Comprehensive Cancer Care for Children and
Their Families” March 2015 joint workshop by the Institute of Medicine (IOM) and the …

Preferences for the organization of long-term follow-up in adolescent and young adult cancer survivors

S Christen, J Vetsch, L Mader, S Dehler, D Korol… - Supportive care in …, 2016 - Springer
Purpose As survival rates of adolescent and young adult (AYA) cancer patients increase, a
growing number of AYA cancer survivors need follow-up care. However, there is little …

Follow-up care after childhood cancer: survivors' expectations and preferences for care

G Michel, DM Greenfield, K Absolom, RJ Ross… - European Journal of …, 2009 - Elsevier
AIMS: To describe (1) self-rated quality of life, late effects and perceived future
vulnerability,(2) expectations before a follow-up appointment, subsequent satisfaction and …