Care coordination is the deliberate organization of patient care activities between two or
more participants (including the patient) involved in a person's care to facilitate the …

There is a need for health professionals to provide parents with not only evidence-based
child health websites but also instruments to evaluate them. The main aim of this research …

Objective: This clinical intervention study aimed to improve care integration and health
service delivery for children with concurrent neurodevelopmental disorders and chronic …

Introduction: Robust measures of integration are essential for assessment of the
development, design and implementation of integration within healthcare systems. This …

Spinal muscular atrophy (SMA) is a neurodegenerative disorder that is characterized by
progressive weakness, respiratory insufficiency, and dysphagia. Due to symptom burden …

Children with autism spectrum disorder (ASD) present with complex medical problems that
are often exacerbated by a range of other intellectual and psychiatric comorbidities. These …

Background Parent-reported experience measures are part of pediatric Quality of Care
(QoC) assessments. However, existing measures were not developed for use across …

Background: This research aimed to develop a questionnaire to analyze perceived aspects
of using digital technology among nursing students as a collaborative tool. We further sought …

Background: Electronic health record (EHR)–integrated digital personal health records
(PHRs) via Fast Healthcare Interoperability Resources (FHIR) are promising digital health …

Objectives To determine the measurement properties of PaRental Experience with care for
Children with serIOUS illnesses (PRECIOUS), a parent-reported measure of Quality of Care …