The evolution of biobanking best practices

J Vaught, NC Lockhart - Clinica chimica acta, 2012 - Elsevier
Biobanks and biospecimens are critical components for many areas of clinical and basic
research. The quality of biospecimens and associated data must be consistent and collected …

Privacy preserving interactive record linkage (PPIRL)

HC Kum, A Krishnamurthy… - Journal of the …, 2014 - academic.oup.com
Objective Record linkage to integrate uncoordinated databases is critical in biomedical
research using Big Data. Balancing privacy protection against the need for high quality …

Symptom-Disease Pair Analysis of Diagnostic Error (SPADE): a conceptual framework and methodological approach for unearthing misdiagnosis-related harms using …

AL Liberman, DE Newman-Toker - BMJ quality & safety, 2018 - qualitysafety.bmj.com
Background The public health burden associated with diagnostic errors is likely enormous,
with some estimates suggesting millions of individuals are harmed each year in the USA …

Changing the research landscape: the New York City clinical data research network

R Kaushal, G Hripcsak, DD Ascheim… - Journal of the …, 2014 - academic.oup.com
Abstract The New York City Clinical Data Research Network (NYC-CDRN), funded by the
Patient-Centered Outcomes Research Institute (PCORI), brings together 22 organizations …

Leveraging electronic health records for clinical research

SR Raman, LH Curtis, R Temple, T Andersson… - American heart …, 2018 - Elsevier
Electronic health records (EHRs) can be a major tool in the quest to decrease costs and
timelines of clinical trial research, generate better evidence for clinical decision making, and …

Understanding enterprise data warehouses to support clinical and translational research

TR Campion Jr, CK Craven, DA Dorr… - Journal of the …, 2020 - academic.oup.com
Abstract Objective Among National Institutes of Health Clinical and Translational Science
Award (CTSA) hubs, adoption of electronic data warehouses for research (EDW4R) …

Health standards for long duration and exploration spaceflight: ethics principles, responsibilities, and decision framework

J Kahn, CT Liverman, MA McCoy - 2014 - pubmed.ncbi.nlm.nih.gov
Since its inception, the US human spaceflight program has grown from launching a single
man into orbit to an ongoing space presence involving numerous crewmembers. As the US …

Human subjects protection and technology in prevention science: selected opportunities and challenges

AR Pisani, PA Wyman, DC Mohr, T Perrino, C Gallo… - Prevention …, 2016 - Springer
Internet-connected devices are changing the way people live, work, and relate to one
another. For prevention scientists, technological advances create opportunities to promote …

A SOA‐Based Platform to Support Clinical Data Sharing

R Gazzarata, B Giannini… - Journal of healthcare …, 2017 - Wiley Online Library
The eSource Data Interchange Group, part of the Clinical Data Interchange Standards
Consortium, proposed five scenarios to guide stakeholders in the development of solutions …

Perfectly secure and efficient two-party electronic-health-record linkage

F Chen, X Jiang, S Wang, LM Schilling… - IEEE internet …, 2018 - ieeexplore.ieee.org
Patient health data are often found spread across various sources. However, precision
medicine and personalized care require access to the complete medical records. The first …