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The evolution of biobanking best practices
J Vaught, NC Lockhart - Clinica chimica acta, 2012 - Elsevier
Biobanks and biospecimens are critical components for many areas of clinical and basic
research. The quality of biospecimens and associated data must be consistent and collected …
research. The quality of biospecimens and associated data must be consistent and collected …
Privacy preserving interactive record linkage (PPIRL)
HC Kum, A Krishnamurthy… - Journal of the …, 2014 - academic.oup.com
Objective Record linkage to integrate uncoordinated databases is critical in biomedical
research using Big Data. Balancing privacy protection against the need for high quality …
research using Big Data. Balancing privacy protection against the need for high quality …
Symptom-Disease Pair Analysis of Diagnostic Error (SPADE): a conceptual framework and methodological approach for unearthing misdiagnosis-related harms using …
Background The public health burden associated with diagnostic errors is likely enormous,
with some estimates suggesting millions of individuals are harmed each year in the USA …
with some estimates suggesting millions of individuals are harmed each year in the USA …
Changing the research landscape: the New York City clinical data research network
Abstract The New York City Clinical Data Research Network (NYC-CDRN), funded by the
Patient-Centered Outcomes Research Institute (PCORI), brings together 22 organizations …
Patient-Centered Outcomes Research Institute (PCORI), brings together 22 organizations …
Leveraging electronic health records for clinical research
SR Raman, LH Curtis, R Temple, T Andersson… - American heart …, 2018 - Elsevier
Electronic health records (EHRs) can be a major tool in the quest to decrease costs and
timelines of clinical trial research, generate better evidence for clinical decision making, and …
timelines of clinical trial research, generate better evidence for clinical decision making, and …
Understanding enterprise data warehouses to support clinical and translational research
Abstract Objective Among National Institutes of Health Clinical and Translational Science
Award (CTSA) hubs, adoption of electronic data warehouses for research (EDW4R) …
Award (CTSA) hubs, adoption of electronic data warehouses for research (EDW4R) …
Health standards for long duration and exploration spaceflight: ethics principles, responsibilities, and decision framework
J Kahn, CT Liverman, MA McCoy - 2014 - pubmed.ncbi.nlm.nih.gov
Since its inception, the US human spaceflight program has grown from launching a single
man into orbit to an ongoing space presence involving numerous crewmembers. As the US …
man into orbit to an ongoing space presence involving numerous crewmembers. As the US …
Human subjects protection and technology in prevention science: selected opportunities and challenges
Internet-connected devices are changing the way people live, work, and relate to one
another. For prevention scientists, technological advances create opportunities to promote …
another. For prevention scientists, technological advances create opportunities to promote …
A SOA‐Based Platform to Support Clinical Data Sharing
R Gazzarata, B Giannini… - Journal of healthcare …, 2017 - Wiley Online Library
The eSource Data Interchange Group, part of the Clinical Data Interchange Standards
Consortium, proposed five scenarios to guide stakeholders in the development of solutions …
Consortium, proposed five scenarios to guide stakeholders in the development of solutions …
Perfectly secure and efficient two-party electronic-health-record linkage
Patient health data are often found spread across various sources. However, precision
medicine and personalized care require access to the complete medical records. The first …
medicine and personalized care require access to the complete medical records. The first …