A rapid systematic review of outcomes studies in genetic counseling

L Madlensky, AM Trepanier, D Cragun… - Journal of genetic …, 2017‏ - Wiley Online Library
As healthcare reimbursement is increasingly tied to value‐of‐service, it is critical for the
genetic counselor (GC) profession to demonstrate the value added by GCs through …

Genetic testing for congenital non-syndromic sensorineural hearing loss

M Raymond, E Walker, I Dave, K Dedhia - International journal of pediatric …, 2019‏ - Elsevier
Introduction Approximately 60% of congenital pediatric hearing loss is of genetic etiology. To
evaluate non-syndromic sensorineural hearing loss (NSSNHL), guidelines emphasize the …

Mutations in GJB2 as major causes of autosomal recessive non-syndromic hearing loss: first report of c. 299-300delAT mutation in Kurdish population of Iran

F Azadegan-Dehkordi, T Bahrami… - … of Audiology & …, 2018‏ - pmc.ncbi.nlm.nih.gov
Background and Objectives Autosomal recessive non-syndromic hearing loss (ARNSHL)
with genetic origin is common (1/2000 births). ARNSHL can be associated with mutations in …

Using video technology to engage deaf sign language users in survey research: An example from the'Insign'project

J Napier, K Lloyd, R Skinner, GH Turner… - … & Interpreting: The …, 2018‏ - search.informit.org
For many deaf signers, a signed language is their first or preferred language; spoken or
written languages are often second languages and literacy levels among deaf signers vary …

Genetic testing hearing loss: The challenge of non syndromic mimics

C Gooch, N Rudy, RJH Smith, NH Robin - International journal of pediatric …, 2021‏ - Elsevier
Congenital hearing loss is a common cause of morbidity in early childhood. There are
multiple reasons for congenital hearing impairment, with genetic contribution becoming …

Towards cultural competence in the genomic age: A review of current health care provider educational trainings and interventions

MA McGinniss, AG Tahmassi, E Ramos - Current Genetic Medicine …, 2018‏ - Springer
Abstract Purpose of Review The increasing diversity of the USA brings opportunities and
challenges for health care providers, health care systems, and policymakers to create and …

Personal utility of genomic sequencing for infants with congenital deafness

E Tutty, DJ Amor, A Jarmolowicz… - American Journal of …, 2021‏ - Wiley Online Library
Decisions about genetic testing have traditionally been based on clinical utility and cost, but
personal utility is increasingly recognized when assessing the value of testing. Whole …

The role of educational experiences in enhancing the cultural identity of deaf and hard-of-hearing undergraduate female students in Saudi Arabia

MHO Turkestani, NIA Albash - SAGE Open, 2022‏ - journals.sagepub.com
This study explored how educational experiences enhance the cultural identity of deaf and
hard-of-hearing undergraduate female students in Saudi Arabia, using an explanatory …

[HTML][HTML] Ethical issues associated with preconception genetic screening: historical experience and current trends

AE Donnikov - Obstetrics and gynecology, 2019‏ - en.aig-journal.ru
The discovery of molecular markers for hereditary diseases and the development of
technologies that made genetic diagnosis accessible to a wide range of people have …

Этические вопросы, связанные с преконцепционным генетическим скринингом: исторический опыт и современные тенденции

АЕ Донников - Акушерство и гинекология, 2019‏ - elibrary.ru
Открытие молекулярных маркеров наследственных болезней и развитие технологий,
сделавших генетическую диагностику доступной широким слоям населения, создали …