Background As biobank research has become increasingly widespread within biomedical
research, study-specific consent to each study, a model derived from research involving …

Therapeutic misconception has been extensively studied and addressed within clinical
trials. An equivalent in the genetic research context has been identified as diagnostic …

There are an increasing number of population studies collecting data and samples to
illuminate gene-environment contributions to disease risk and health. The rising affordability …

In biobanks, a broader model of consent is often used and justified by a range of different
strategies that make reference to the potential benefits brought by the research it will …

This article examines public perceptions of biobanks in Europe using a multi-method
approach combining quantitative and qualitative data. It is shown that public support for …

Background Organoid technology is emerging rapidly as a valuable tool for precision
medicine, particularly in the field of Cystic Fibrosis (CF). However, biobank storage and use …

Although big-data research has met with multiple controversies in diverse fields, political
and security implications of big data in life sciences have received less attention. This paper …

Is there a gene for autism? Despite a billion-dollar, twenty-year effort to find out—and the
more elusive the answer, the greater the search seems to become—no single autism gene …

The progress in genomic research has led to increased sampling and storage of biological
samples in biobanks. Most biobanks are located in high-income countries, but the …

Research ethics, once a platform for declaring intent, discussing moral issues and providing
advice and guidance to researchers, has developed over time into an extra-legal regulatory …